[Willow34]

My nose and cheeks are not bad today....but if I go in the sun for any length of time, the redness gets really pronounced and I start to feel bad. Could be that I am just sun sensitive, but I wanted to know if this looks suspicious.

Also, these are the two worst rashes on my legs. The worse one has been there for around 8 months to a year. I couldn't get rid of it... nothing worked! It looks like there are scabs on the skin (sorry, I know gross), but there isn't. I don't scratch them at all.. they are not itchy. They get much worse in the sun.

My GP sees me all the time, and my nose and cheeks are worse some days than others...but yet he doesn't seem to bother much with it. I have ANA tests in the past... all of them were positive. I was negative on the anti-DSNA (is that how you spell it?). My sed rate and CRP are always very high. But yet, that could mean anything...

http://i70.photobucket.com/albums/i103/dar7733/Legrash2.jpg


http://i70.photobucket.com/albums/i103/dar7733/myfacerash.jpg

 

[Willow34]

http://i70.photobucket.com/albums/i103/dar7733/legrash1.jpg

 

[Maia]

I am not an expert on rashes, so I can't comment much on the pictures. Have you been to see a dermatologist yet & inquired about a biopsy to determine if these rashes are due to lupus? This would be especially important to do if you are having difficulty getting a diagnosis and treatment due to negative DsDNA. {even though a negative DsDNA should *NOT* preclude a lupus diagnosis since only 1/2 of SLE patients have them!}

It seems as if the ANA, raised Sed rate and CRP, and the symptoms you have that led you to seek answers from a doctor would be enough to get you started on some medications. Even if they aren't comfortable giving you a specific diagnosis... something on the order of UCTD seems like it could be given & you could get started on some meds.

 

[Mandiee77]

Wow that looks very similar to what mine appears as on my arms. Although mine has now disappeared after a week, and left a "Scaley" residue...

 

[Clare.T]

Hello Willow
I think the answer has to be that any skin problem that doesn't respond to treatment and that persists or recurs needs specialist evaluation. As far as I know, most lupus rashes are photosensitive so if the rash appears or is worse after sun exposure, sometimes even to heat from any source or emotional stress even good excitement, that needs to be mentioned. Also whether it itches or not or burns. Lupus rashes can come and go. It's bad news when they are permanent as they are much harder to get rid of.
Ulcers and open sores are even worse news. Try tea tree oil to reduce the risk of infection and promote speedy healing, ahving done a test patch first to make sure you aren't one of the few people who are allergic to it.

It is almost always impossible to make any comment about photos - I mean one of yours Willow looks exactly like the itchy something I have on my foot top right now, apparently insect bites judging from the 3 neat little holes.



Clare