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Does this sound familiar to anyone?

564 Views 1 Reply 2 Participants Last post by  raggedyann1
Hi! My name is Bridgette and I'm new to the site. I am 22 years old and I was diagnosed with lupus when I was in early high school. I was also diagnosed with Raynaud's at the same time but over the past few years I've become skeptical of the Raynaud's diagnosis. I only have the symptoms in my feet and they only occur during the winter, but when my feet are warm (especially after being extremely cold) they don't feel relieved, instead they feel very very hot and they start to tingle painfully and often it can cause spasms in my legs. My toes often get blisters and it is extremely painful and almost causes me to be unfunctional. I'm treating it with a low dose aspirin and Trental (as well as Coenzyme Q10 and a B vitamin complex).

I'm posting because I was wondering if anyone else has these symptoms. I've looked into erythromalalgia and I'm beginning to think that I may have it in conjunction with the Raynaud's but I haven't had a chance to run the idea past my rheumatologist yet. If anyone could help me out I'd really appreciate it.
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Not all of us with Raynauds have all symptoms of it. The red tinglings is when too much blood flow gets to the ends of the nerves in feet and fingers most often. If I take too hot of a shower then my feet get red and almost painful.

The blisters can also occur with Secondary Raynauds in conjunction with Vasculitis, Scleroderma and I believe APS. It is a lack/reduction of blood flow to the tips of the toes or in my case the fingertips. I am not familiar with the other syndrome you mentioned.

I take a calcium channel blocker, nifedipine, to control my raynauds. I also have nitroglycerin creme for when I have a bad episode and my fingertips get painful. The blisters can become ulcers and infection usually follows with them.

Is your doctor aware of the issues you are having with your feet? If you are getting blisters regularly I would strongly suggest having your doctor examine them.

Take care,
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