Welcome to the Forum. Im from Dublin and have been diagnosed now for over three years.
We have a chat room where you can pop in and meet people directly and get some instant feedback. You can see if there is anyone in the chat room by looking at the 'Chat Room' link above. If there are members in there you will see a number written beside it to show how many people are in there. Alternatively just click into chat and wait there until someone comes along. If a member notices someone in there they will usually pop in to say hello.
The other way to get information is through these Message Boards. If you have specific questions feel free to post as many as you like. There will always be someone along to answer your question soon.
This is a great site full of lovely, friendly members willing to share their experience and advice with each other. We dont have all the answers but we certainly make sure that information is accurate and referenced. So you have come to the right place to find out more about your disease.
Maybe I'll start by asking you a few questions How does your Lupus affect you? What medications are you currently on? Do you know much about them? Are you under the care of a good Rheumatologist? Have you any burning questions right now?
Its nice to meet you Donna and I look forward to getting to know you.
Hello Donna, I am Lola, I am rather a long term patient also have a Daughter with Lupus.
I really believe that people with Lupus need to be in touch with others the same. However good family and friends are there are some things they just don't grasp, you need somewhere like this to come and share things.
Big Welcome to you,
This is certainly the place for chatting with other people with lupus. I hope you will find it comforting and helpful. Knowing others with similar problems can make all the difference to living well with lupus. It can be such a lonely business. We have at least one other member from Northern Ireland. It seems getting good treatment there isn't easy.
Hello Karen Good to meet you ! I am a Geordie in exile among the southern foreigners to be near family.
I don't know if having 3 Irish immigrant grandparents counts for anything !
I'm looking forward to hearing more from you.