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For Dr D Cruz' patients :)

I had my so- called annual (15 month this time) check up at St Thomas' on Monday and saw Dr Rachel Hunter or is it Davies, I can't remember :eek:, who has taken over Dr D' Cruz' Monday clinic while he takes a two year sabbbatical to focus on lupus research. She was very, very nice although I was a bit surprised she didn't examine me so I needn't have bothered with my best undies. To be fair I dont have any physical concerns other than skin at the moment. There was plenty of opportunity for talk. She was observing and questioning though and wondered if some colouring on my arms was due to the Mepacrine. In fact it is some bottle tan I was trying out :)

I don't know if she has taken over all his clinics nor when his sabbatical started.

In the general chat, she said it is acknowledged nowadays that extreme stress can definitely a trigger for flares and also initial activation of disease. She also mentioned that they are thinking of setting up specialist nurse led clinics that would give the opportunity to be seen more often in between consultant appointments and asked if I would be interested. I said I thought it would be an excellent idea as the long wait between seeing a consultant is a major problem for some people with far greater needs than mine who need far more frequent visits and specialist advice, adjustment of medicines for example and specialised blood testing

I mentioned that getting through to them was a major difficulty for example if a GP needs advice or we ourselves had a relatively simple question or needed a word of advice particularly about medicines especially those of us who do not have well informed or concerned GPs. The on-line (retired) nurse arrangement seems to be of limited value.

She tried to get me 6 months supply of Mepacrine from the pharmacy but they weren't having any of it!

:)
Clare
 

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Clare, I am glad you had a good appt. Shame your best undies went to waste!!!! I had to laugh at your bottled tan comments!!!!

The nurse scheme sounds like an excellent idea.

Take care

Deb
 

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elisabethm
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512 Posts
Hi clare glad you had a good appointment.The idea of a nurse that speacilizes
in lupus i think would be a great idea.We have one that does diabeties and smear's Another that does astma and blood's i hope that will happen one day
then we could see her on a regular basis Elisabeth
 

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Hi Clare,

It's Rachel Davies, I saw her when I took part in the trial. Rachel Hunter was Rod Stewarts ex LOL.

She is very personalble to deal with and always helpful. I just had my 4 monthly rheumy appnt with a doc that I have a lot of respect for & think he was having an off day! I turned up in the middle of a flare with such a swollen face & all he said was 'well it won't hurt you'. What?

Anyway, I won't bore you with the rest but it wasn't the best of experiences. I'm afraid my best undies went to waste too :rolleyes:

Hugz,

Pam xxx
 

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Pollianna
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How weird, was just talking to one of the nurses today who told me the same story . I got the impression that it's up and running or maybe it's defo going ahead!! She never mentioned that Dr D"Cruz was on sabatical :worried: I will definately miss him. I don't think he's off quite yet as he was there yesterday as his secretary told me she would get a chance to speak to him.....
 
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