[jltntl]

I'm wondering why is Plaquenil the med of choice if Quinacrine doesn't affect the eyes????

...Julia

 

[jltntl]

Hi Clare. Thanks for the reply. Sounds like a similar story to natural thyroid hormone....replaced by the large drug companies making synthetics.???
...Julia

 

[jltntl]

Hi 9kids4me
My 14yo daughter has SLE and Raynauds and has been on Plaquenil for just over a year also. I had heard about the eye pigment growing...but not retina damage...and they suggested an eye check every 12 months but I took her at 6 months and then again at 12 months and so far so good. They tell me they are also going to test her on the new capillary machine....but apparently she on a long waiting list. Will they test your boy on this too for his Raynauds?
...Julia

 

[jltntl]

9kids4me
Hi. I'm sorry to hear that news. I can imagine how you must be feeling. I hope you don't have to wait too long to see your boy's specialist. Hopefully he will have minimal damage seeing as he only been on the med 12 months. That was the recommended time for an eye check, so you would imagine they would only let you go for an amount of time that wouldn't cause too much damage...surely?
All the best. Hang in there mum.
...Julia