TheLupusSite.com banner

1 - 20 of 21 Posts

·
Registered
Joined
·
14,661 Posts
Many thanks for this info wheelie ! :)

I'll certainly do what I can.
I hope you're getting on OK, if not well

Hugs
Clare
 

·
Registered
Joined
·
15,684 Posts
Thanks for posting that wheelie :bigsmile: I've completed the survey and hope it will help in some small way. Nice to 'see' you again and I hope things are going alright with you.

love
Lily
 

·
Registered
Joined
·
6,152 Posts
Thanks for posting the link. I have completed the survey. They are targeting to get 70 responses from each country so I will be promoting it as much as possible. Those who are carers of people with Lupus can also complete the survey.

I wouldnt mind trying to get to Copenhagen myself.....

Cheers
Joan:rose:
 

·
Registered
Joined
·
15,684 Posts
ohh can I come too Joan :bigsmile:
 

·
Registered
Joined
·
14,661 Posts
I have always wanted to visit Copenhagen !

:)
Clare
 

·
Registered
Joined
·
7,800 Posts
Done that too :) I was actually asked if I'd like to maybe go as one of the Belgian association representatives. Doubt I'll be up to it physically but I like the idea :hehe:
 

·
Registered
Joined
·
279 Posts
just done survey hope to hear the results b interesting

dixy
 

·
Registered
Joined
·
6,152 Posts
Mmmm I can sense a Copenhagen 'meet up' in the offing...... I just might do some research into costs

Luv n stuff
Joan:rose:
 

·
Registered
Joined
·
6,152 Posts
It seems the symposium only lasts for one and half hours unless Im reading the programme wrong? It says from 17.30 to 19.00 on June 12th. It seems a long way to go for such a short session... Of course there is always the sights of Copenhagen to see to fill in the gaps :) I will do more research....

Luv n stuff
Joan:rose:
 

·
Registered
Joined
·
7,800 Posts
I have (or had) friends in Denmark, could get back in touch :rotfl:
I agree though, long way just to "meet up" :eek:
 

·
Registered
Joined
·
15,684 Posts
One of my neighbours and a very close friend is from Denmark originally. She has a house there still but at the mo she is trecking in Tibet :rotfl:Oh well I can travel in my mind to Copenhagen :lol:

love
Lily
 

·
Registered
Joined
·
1,613 Posts
Hi Wheelie :wavey:

Thanks for posting that link, i have filled in the survey. I hope many more will take the time to fill it in and help make lupus awareness better, i am sure it will help us all if people knew as much about lupus as they do about other diseases, that includes family, friends and the health professionals too.

Take care :hug: Jo :hug:
 

·
Registered
Joined
·
31 Posts
One Voice in a million

Thanks for the information, have completed the survey, the more voices , the better chance of being heard...if you know what I mean..
Take Care
Ellen:)
 

·
The Other Illinois Tammy
Joined
·
1,193 Posts
I don't live in Europe but did want to take the survey, I wonder why the United States don't care enough to put out a similar survey? I feel if you have lupus you qualify to do the survey I could be wrong. I have to say I enjoyed doing it very much Thank you wheelie.
 

·
Registered
Joined
·
182 Posts
Hi many thanks for the link have just completed survey. The more people the better.

Hope you all well xxxx
 

·
Administrator
Joined
·
10,165 Posts
Thank you for posting the results Clare. Let's hope the input will shine more of a light on the need for research in Lupus.

Take care,
Lazylegs
 

·
Registered
Joined
·
4,369 Posts
Jenna,

Best to contact the organistation conducting that survey for more info if interested!
 
1 - 20 of 21 Posts
Top