[wheeliefab]

Hello Lupus Europe are doing an online survey
http://www.elef.rheumanet.org/newsflash/may-2009.pdf

Please consider taking part and make your voice heard.
- it's linked to EULAR (Lupus Europes Uniting people with Lupus throughout Europe) who are holding a symposium in June heres the homepage link in case anyone has trouble accessing the survey

http://www.elef.rheumanet.org/

 

[Clare.T]

Many thanks for this info wheelie !

I'll certainly do what I can.
I hope you're getting on OK, if not well

Hugs
Clare

 

[Lily]

Thanks for posting that wheelie :bigsmile: I've completed the survey and hope it will help in some small way. Nice to 'see' you again and I hope things are going alright with you.

love
Lily

 

[Joandublin]

Thanks for posting the link. I have completed the survey. They are targeting to get 70 responses from each country so I will be promoting it as much as possible. Those who are carers of people with Lupus can also complete the survey.

I wouldnt mind trying to get to Copenhagen myself.....

Cheers
Joan:rose:

 

[Lily]

ohh can I come too Joan :bigsmile:

 

[Clare.T]

I have always wanted to visit Copenhagen !


Clare

 

[Katharine]

Done that too I was actually asked if I'd like to maybe go as one of the Belgian association representatives. Doubt I'll be up to it physically but I like the idea :hehe:

 

[dixy]

just done survey hope to hear the results b interesting

dixy

 

[Joandublin]

Mmmm I can sense a Copenhagen 'meet up' in the offing...... I just might do some research into costs

Luv n stuff
Joan:rose:

 

[Joandublin]

It seems the symposium only lasts for one and half hours unless Im reading the programme wrong? It says from 17.30 to 19.00 on June 12th. It seems a long way to go for such a short session... Of course there is always the sights of Copenhagen to see to fill in the gaps I will do more research....

Luv n stuff
Joan:rose:

 

[Katharine]

I have (or had) friends in Denmark, could get back in touch :rotfl:
I agree though, long way just to "meet up"

 

[Lily]

One of my neighbours and a very close friend is from Denmark originally. She has a house there still but at the mo she is trecking in Tibet :rotfl:Oh well I can travel in my mind to Copenhagen :lol:

love
Lily

 

[bugsy]

Hi Wheelie :wavey:

Thanks for posting that link, i have filled in the survey. I hope many more will take the time to fill it in and help make lupus awareness better, i am sure it will help us all if people knew as much about lupus as they do about other diseases, that includes family, friends and the health professionals too.

Take care :hug: Jo :hug:

 

[silverlady1]

One Voice in a million

Thanks for the information, have completed the survey, the more voices , the better chance of being heard...if you know what I mean..
Take Care
Ellen

 

[onetay]

I don't live in Europe but did want to take the survey, I wonder why the United States don't care enough to put out a similar survey? I feel if you have lupus you qualify to do the survey I could be wrong. I have to say I enjoyed doing it very much Thank you wheelie.

 

[orangelily]

Hi many thanks for the link have just completed survey. The more people the better.

Hope you all well xxxx

 

[Clare.T]

Survey Results

See

http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=2569&zoneid=99



Clare

 

[lazylegs]

Thank you for posting the results Clare. Let's hope the input will shine more of a light on the need for research in Lupus.

Take care,
Lazylegs

 

[jenna.tamminga]

Does anyone know when the results of this survey will be released?
The more I get involved in researching lupus the more interesting it becomes

 

[greenhaggis]

Jenna,

Best to contact the organistation conducting that survey for more info if interested!