Hi Julie
Getting the exercise balance right has been a big problem for me. I was brought up to believe that you haven't really exercised unless you're running with sweat and thoroughly worn out, which means that since having lupus I've alternated between doing too much and tiring myself out, and doing nothing at all. Neither is any good for me so now I've been referred to a physio to help me work out a sensible exercise regime. I feel so stupid that I can't decide for myself how much is the right amount and it didn't help that the last doc I saw had no sympathy, in fact he outright told me that my priorities were all wrong. They just don't realise sometimes what it is they're asking us to do.
Anyway, it turns out I have no helpful advice here, only best wishes that you find your balance and that it helps keep at least some of your symptoms at bay.
xxx
Getting the exercise balance right has been a big problem for me. I was brought up to believe that you haven't really exercised unless you're running with sweat and thoroughly worn out, which means that since having lupus I've alternated between doing too much and tiring myself out, and doing nothing at all. Neither is any good for me so now I've been referred to a physio to help me work out a sensible exercise regime. I feel so stupid that I can't decide for myself how much is the right amount and it didn't help that the last doc I saw had no sympathy, in fact he outright told me that my priorities were all wrong. They just don't realise sometimes what it is they're asking us to do.
Anyway, it turns out I have no helpful advice here, only best wishes that you find your balance and that it helps keep at least some of your symptoms at bay.
xxx
