[jltntl]

Hi all.
My daughter rolled her ankle last week playing sport. When I went to pick her up she looked a wreck. We iced the injury etc and the following morning she complained she felt dizzy and a moment later did a face plant onto the bench top. She also started to fit for a few seconds. We laid her on the floor and she was probably out for a minute or 2.

She has always been a fainter when her body has been under stress from injury.

The last 2 episodes however have included a seizure along with the faint. Is this a common thing with Lupus? Is it anything to be concerned about?

We were told her Lupus would only be mild...it involves the malar rash, migraines, hair loss, fatigue. I'm starting to wonder if there is more going on than we thought - or if this reaction is fairly typical of Lupus.

...Julia

 

[lin]

i would be taking her stright back to the dr's, i have seizures due to my Lupus.i thnk they should be doing futher test on your daughter, better be safe than sorry, just what i think,I was told mild at first too, that was in 2000, belive me things can change.

thinking of you both Lin xxxxxxxxxxxx

 

[Clare.T]

Hello Julia

I am very sorry to hear about your daughter's fitting. I agree with Lin - this isn't normal or even usual with lupus. Lupus is notoriously unpredictable, in fact it is said that is the only sure thing about it.

Please let us know how you get on - obviously it is a matter for concern but I hope it is not too serious and can be treated and managed.

All the best
Clare

 

[alexbelfast]

hi hope your daughter id feeling better but take her back to the dr to get checked out
but fainting and tye small seisure can be normal after a injury but usually happens right away or a few moments later not the next day so get her of the the dr
take care
alex

 

[Raglet]

if you think your daughter may have had a seizure, then it needs to be diagnosed properly to ensure that it was a seizure. Personally I wouldn't expect someone with lupus to develop seizure unless they have central nervous system involvement - it doesn't usually just happen out of the blue. People usually have other cns problems going along with it.

So, if you daughter may have had a seizure (as opposed to a simple faint) then take her to the doctor so she can be fully assessed. If a person is suspected of having a seizure they need to have an eeg do check what is going on.

hth, and btw I have had seizures my entire life (epilepsy since birth, nothing to do with my lupus though I do have cns lupus)
cheers

raglet

 

[jltntl]

Thanks for all your replies. She bounces back so well and last time this happened the docs at the hospital weren't concerned at all. But now she has a specialist who looks after her, so will mention to her. Thanks.

btw, how do they ascertain if it was a seizure. What is the test?

It was so quick my dh didn't see it????!!!! but I and my son did and we were all right next to her. I sort of lay on her to stop her falling off the bench with the jerking (coz she's so much bigger than me).

...Julia

 

[jltntl]

Also, not that my daughter is old enough yet....but is there a problem with driving licences and seizures?
...J

 

[Raglet]

The tests for seizures is the EEG. Seizures, and the tendency for seizure, shows up in the brainwave pattern so that is recorded using electrodes on the scalp - these days they just use some quick drying glue that washes out to attach them, in the old days they used to use horrible rubber hair nets made from tubes (actually before that they used plasticene to attach the electrodes, but I was a baby then - my poor mother had to pick it out of my hair).

It is a painless test, just a matter of recording the brainwaves. But first, a neurologist would do some very close questioning of your daughter and anyone else who observed the event to determine if it was likely to be a seizure.

You also mentioned that your daughter fainted - what happened that makes you concerned that she had a seizure ?

Regarding driving - it is possible to drive if seizures are under good control - I have had epilepsy since babyhood and I drive.

hth

raglet

 

[MichelleAnn]

Could your daughter of been dehydrated some? That can cause seizures. I know when I am outside and get over heated or in the sun, I get dizzy, light headed and exhausted. Its all part of the Lupus. I'd discuss this with her doctor. Maybe he will order some blood work to check her levels to see if she is in a flareup. Is there other signs she could be flaring? Sleeping more? A mothers worry never ends....Take care!! :rose:

 

[justwondering7]

Your daughter story looks like the one of my sister. When it happen are her migrain prior, during or after worst than usual?

Hi all.
My daughter rolled her ankle last week playing sport. When I went to pick her up she looked a wreck. We iced the injury etc and the following morning she complained she felt dizzy and a moment later did a face plant onto the bench top. She also started to fit for a few seconds. We laid her on the floor and she was probably out for a minute or 2.

She has always been a fainter when her body has been under stress from injury.

The last 2 episodes however have included a seizure along with the faint. Is this a common thing with Lupus? Is it anything to be concerned about?

We were told her Lupus would only be mild...it involves the malar rash, migraines, hair loss, fatigue. I'm starting to wonder if there is more going on than we thought - or if this reaction is fairly typical of Lupus.

...Julia