Joined
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457 Posts
hello all
well.....my Cellcept is lowering my white blood count too much so that’s the reason my glands have been up, throat sore, chest pain and the reason for the excessive bleeding...so they’re not the answer I hoped they would be...they are reducing the dosage and seeing if that is enough to make me feel well without having such a bad effect on my white cells. Should mean my tummy is a bit more settled though as I have found not having a loo to hand difficult sometimes on 1000mg
so I have a very sore buttock as I have been given another 80mg kenalog injection for a bit of pain relief- now my first one is wearing off I realise it was helping a lot with the stiffness
So all in all it goes on! I know it’s mad but every time I go to the Rheumy I expect the miracle pill to make me feel well again and am always disaapoi9nted when there is no simple answer…guess I’m just an eternal optimist…I know I should be grateful as it could be worse –I have a ‘mild’ case of lupus apparently…nearly burst into tears when he said that as if this is mild why do I feel so rough and my heart goes out to ‘proper’ lupus sufferers…..and at the end of the day I do have a lot of people who care and look after me but am just feeling soooooooo despondent with it all as I feel so limited in my activities. Just feel I need a month off lupus to give me the strength to carry on! Then to top it off I spent last night going hot and cold and throwing up…don’t know if it’s the injection, emotion or a bug but boy do I look rough

sorry to be doom and gloomy :worried::worried:but am FED UP

love to all
Rachel
well.....my Cellcept is lowering my white blood count too much so that’s the reason my glands have been up, throat sore, chest pain and the reason for the excessive bleeding...so they’re not the answer I hoped they would be...they are reducing the dosage and seeing if that is enough to make me feel well without having such a bad effect on my white cells. Should mean my tummy is a bit more settled though as I have found not having a loo to hand difficult sometimes on 1000mg
so I have a very sore buttock as I have been given another 80mg kenalog injection for a bit of pain relief- now my first one is wearing off I realise it was helping a lot with the stiffness
So all in all it goes on! I know it’s mad but every time I go to the Rheumy I expect the miracle pill to make me feel well again and am always disaapoi9nted when there is no simple answer…guess I’m just an eternal optimist…I know I should be grateful as it could be worse –I have a ‘mild’ case of lupus apparently…nearly burst into tears when he said that as if this is mild why do I feel so rough and my heart goes out to ‘proper’ lupus sufferers…..and at the end of the day I do have a lot of people who care and look after me but am just feeling soooooooo despondent with it all as I feel so limited in my activities. Just feel I need a month off lupus to give me the strength to carry on! Then to top it off I spent last night going hot and cold and throwing up…don’t know if it’s the injection, emotion or a bug but boy do I look rough
sorry to be doom and gloomy :worried::worried:but am FED UP
love to all
Rachel