[star70]

Hello

I am having a particularly bad flare up off my rash. It is all around my eyes which is so difficult to put ointment on, and it is so sore.

I have been so ill the last week or so, I even missed an appointment at the hospital and now I have to wait months and months to get another one. Dermatologist appointment isn’t until May and I am sick of all this waiting and getting nowhere.

I feel so exhausted and along with all the pain in my abdomen and joints, throwing up, bowel trouble etc I have now developed twitches on my face.

Sometimes, I feel like I am losing my sense of humour with all this. Sorry to have a moan, but I feel like I can’t load this all on my family all the time, as they worry so much.

Thanks for reading!

Star x

 

[star70]

I am afraid I haven’t called the doctor. I feel this would make no difference what so ever. I have been very ill for a long time now and I have had to call out my GP(s) on a few occasions, when I have been particularly ill.

When they eventually arrived I felt like they were no use to me at all. They looked at me and on one occasion when my rash was in a serious flare all I got was “oh yes that is terrible isn’t it”. You think?

As much as my usual GP is very nice. In the past, when I have tried to discuss things with her, I tend to be, what I call fobbed off and get told to speak to my gynae, or when you get your appointment with the dermatologist speak to them.

I have not faired much better in A&E and was treated like I had committed a criminal offence for daring to call an ambulance, after passing out from horrendous pain and sickness. They had no knowledge of endometriosis and acted like I was just having a bad period. It turned out a cyst had burst …..but no need to worry!

This seems to be the story of my life. It took me eleven years to finally get a diagnosis for severe endometriosis (+ other gynae problems), by which time it had decimated my body.

I am not a martyr to things, but I believe that until I get a conclusive diagnosis for what is causing my additional problems (e.g. the severe rash), I am stuck in a no mans land as far as the medical profession is concerned.

Thank you for your reply.

star