I'm afraid that this will be quite a depressing thread as that's how I feel right now :-(
Basically I was diagnosed with UCTD (SS, AIH, poss Lupus, Fibro and a few blood conditions) just over a year ago and so far have tried Plaquenil and Azathioprine but had serious reactions to them both. I am on prozac, pred and Amatrypline (for fibro), diclofenec and paracetamol.
We have just moved and I saw my new dr here in Bristol yesterday and she was so negative about my longterm outlook saying that the best I could hope for is that I stabalise for as long as possible and that I should accept I may never be able to have anymore kids. I have a little girl who is the light of my life and I would love more than anything to give her brothers or sisters.
The steroids have made me put on so much weight, we are broke because I am not working, and I feel like such a fat ugly failure. Everyday I am in so much pain and I can't stop sweating which makes me even more selfconcious, I have zero sex drive and wonder if this is it for me?? At the age of 31 is it all pretty much over????
I have to wait for another few months to see my new Rhuemy but I don't know what drugs I could try next as the Azathioprine almost killed me :-( What if the next lot do???
I guess I just feel so sad, lonely and overwhelmed by it all. The last year has crippled me emotionally and physically. Sorry to be so negative :-(
Basically I was diagnosed with UCTD (SS, AIH, poss Lupus, Fibro and a few blood conditions) just over a year ago and so far have tried Plaquenil and Azathioprine but had serious reactions to them both. I am on prozac, pred and Amatrypline (for fibro), diclofenec and paracetamol.
We have just moved and I saw my new dr here in Bristol yesterday and she was so negative about my longterm outlook saying that the best I could hope for is that I stabalise for as long as possible and that I should accept I may never be able to have anymore kids. I have a little girl who is the light of my life and I would love more than anything to give her brothers or sisters.
The steroids have made me put on so much weight, we are broke because I am not working, and I feel like such a fat ugly failure. Everyday I am in so much pain and I can't stop sweating which makes me even more selfconcious, I have zero sex drive and wonder if this is it for me?? At the age of 31 is it all pretty much over????
I have to wait for another few months to see my new Rhuemy but I don't know what drugs I could try next as the Azathioprine almost killed me :-( What if the next lot do???
I guess I just feel so sad, lonely and overwhelmed by it all. The last year has crippled me emotionally and physically. Sorry to be so negative :-(