[ElephantEyes]

Hi all -

I posted about a month ago wondering whether I was flaring or if I had a virus. Anyway, my new and super efficient rhuematologist decided that she was going to book me into hospital for a few days to thoroughly test me to make sure that there was nothing too serious going on.

I had been feeling much, much better the last couple of weeks - I've never felt so good going into hospital :lol: My facial rash has faded significantly, cough is pretty much gone and the chest wall pain was much improved after I got three steroid injections in my chest.

So anyway in hospital I had (deep breath) blood tests, urine tests, echocardiagram, chest ct, pulmonary function test, pulmonary ct, regular mri, mri with dye, bone density scan, physio consult and pulmonary consult as well as a review with the rhuematologist.

So in the main, they are fine. Small effusion around my heart, but nothing significant. There were slight abnormalities in the first MRI so they sent me for the one with contrast then since I have been having headaches. I don't know the results of that - the rheumy said if anything showed, she would refer me to a neurologist as an outpatient.

Anyway, my question for anyone out there is this - does anyone get headaches from costo or inflammation in general? I think that the headaches I'm getting are referred pain from the costo and the inflammation in my back. My range of motion in my upper body is fine, but when the physio went to work on my back I yelped and squirmed! Same happened when the rhuemy pressed on my chest wall.

I don't usually get headaches so I was wondering if someone else has had this happen too?

Apologies for the long post - it's an update and a question!

Hope you are all keeping well -

Nellie

 

[debatat]

Hi Nellie

Sorry I can't answer your question, but I am pleased to hear that you are feeling much better and have such a great rheumy. I have had costo and am familiar with the yelp when they touch my chest!!! I am sure that someone will be along shortly with answers for you.

Hope you continue to improve

Deb

 

[onetay]

Nellie,
It seems you have had it all done and are up to date with all your tests so far lol. I am glad that not too much showed up and that you do have a few answers to the questions. I know I get migraines and have since I was 14 years old. I missed a lot of school. I quit having headaches and got migraines so I really can't help you with that. I am glad that you are feeling much better and hope for you that it continues to get even better for you in the up coming days.

 

[Pink Pearl]

Hi Nellie,
My first lupus symptom was migraines at age 5. When I was taking plaquenil that really increased my migraines. So, I no longer take that.

If this is lupus related, you might need a referral to a neurologist who works with autoimmune patients, including sle. Many neuro docs have not a clue how to work with autoimmune cns diseases. I've seen a few like that and they can do more harm than good.

Let your rheumy know what is going on. It is now accepted that lupus can cause brain issues and they can help with many of them.
Sally

 

[ElephantEyes]

Thanks folks

Hi all - thanks for that. I'm going back to the rhuemy in two weeks so I'll just see how everything goes in the meanwhile.

Take care -

Nellie