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Discussion Starter · #1 ·
hi all

I was only diagnosed with SLE this january after at least 10 years of being ill & being pushed from pillar to post & all the "its depression & all in your head" route which Im sure many of you can identify with,I started on plaquenil along with NSAIDS & after about 3 months was really begining to feel human again - my hair stopped falling out my joints werent hurting quite so much & the constant swollen glands & sore throats calmed right down along with the brain fog,the fatique was still there but I have to say it was improving & my facial rash is now a light pink rather than bright sunburnt red.

Now though over the last couple of months Ive started developing chronic & constant urinary tract infections that make me feel dreadful & on a couple of occassions have spread to my kidneys,Im now on my 6th course of antibiotics in six weeks & I feel awful again! ggrrrrr

it seems every time I get an infection some of the original lupus symptoms flare up again & its like taking two steps forward & then three back,the doctor isnt sure if the infections are because of the lupus,or the plaquenil because its supressing my immune response but whatever it is Im ****** fed up! & beginning to feel like Im never going to get well
sorry about the rant folks but Ive just really had enough at the moment,Id accepted this illness for what it is & was coping really well with it all, but all these infections have really got me down,will they ever stop? or is this as good as its going to get? I just dont know
 

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Discussion Starter · #4 ·
thanks for that ladies,it helps just to know other people are going through the same thing,
I am under a rheumy who diagnosed me & started me on the plaqeunil but have been seeing my gp for the infections & it was my gp who told me the infections could be because the plaqeunil has weakened my immune system,though I must say hes told me a couple of things about lupus which I have then found out is not quite right,

I could kick myself really because I had an appointment with the lupus specialist nurse at the hospital in may & I had already had a couple of these infections then & I can now see in hindsight that I probably should have told her about it,but to be honest because this is all still quite new to me Im not really sure exactly what I should be telling them..I feel a bit of a hyperchondriac if I tell them every single symptom I have,I think perhaps because no one believed me for so many years there's still a little part of me that thinks they wont believe me & that Im wasting their time,Im due to see the consultant again at the beginning of august so I will definately mention it then,thanks again x
 
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