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Discussion Starter #1
Does anyone get this, and if so did you find out why?
It's driving me nuts! They are sized anything from a small coin up to larger ones, but there is no discoloration to them, or hardness. They just feel like bruises (tender esp. when touched).
I get them mostly on my shins/calves, sometimes under my knees and a few times at the side of my ribs or on my hips.
And no, I am definately not knocking them into things because they seem to appear out of nowhere!
I have noticed though, that when I get more of them/more frequently, then my whole body seems to be more sensitive eg. Partner squeezes my arm in a loving way, and it hurts like * and for a while after too (poor hubby cant touch me sometimes without hurting me!). Dont know if this is connected or just a coincidence!

- Viridian
 

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jmaca
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Yes! All the time! For me, it's chronic, and was one of my first symptoms way back when.

Do you have fibromyalgia? The pressure points in FM often feel like bruises.
 

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:lol: I have no idea! From things I have looked up (various symptoms)it seems to be like FM. Until the end of november, I wont know what it is, but hopefully they can check for that too.
Glad to hear I'm not going mad though. And that it could actually mean something! Is there anything you've found that can help with it? Or anything that causes it/ sets it off?
Not so glad to hear you are suffering too!
:hug: Hope it eases off for you.

- Viridian
 

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Viridian, Many of us have Fibro as well as Lupus and they will certainly be alert to that possibility at London Lupus Centre.
Regarding hurting to be cuddled etc. I know very many of us have this problem. It is very frustrating. I find even if I feel reasonably pain free the idea of being touched is still frightening as I don't want to trigger the pain. My Husband is very big 19 stone, and a bit clumsy with it Bless Him. I cannot even bear his elbow coming onto my side of the bed. Also when I was really bad even wearing a coat in winter seemed to pull on all my joints, you sound pretty much the same.
x Lola
 

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Strange you should say that. I had an unusual sore patch that felt like a bruise at the weekend. It was on my arm just above my elbow on the inside. It was very tender to the touch and came on suddenly. At first I could see nothing then after a while it was slightly red and still very tender if touched. Like you say mine was sort of the size of a large coin. It went after about 24 hours. Not sure what that was but I am diagnosed with Fibromyalgia and identify with what Lola said about just wearing a coat seems to drag on your body. Ive changed my handbag to a much smaller one as the strap on my shoulder is very uncomfortable.
Id be interested to see what your tender spots are and if I get them again too.
Always seems to be something doesnt there. Hope you find out what it is and it doesnt give you too much trouble.
Sal x
 

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Discussion Starter #6
Thanks once again Lola. You're right, it is frustrating, esp when you tell them that they are being gentle and it's not their fault! :D I get the thing with the coat. Like it's way too heavy! In fact, I tend to get that with clothes in general sometimes. It's all too much trying to put them on let alone actually wear them! My skin goes way too sensitive, and makes me feel irritable all day!
Salopsally - I love your name! A lot of my family used to come from there, and it's rare that I here the name 'Salop' anymore! Anyway, your tender point sounds like when I get them on my arms sometimes. It's almost like it's between the bones (if that makes sense?!). After the 25th, whatever the outcome, I will definately update!

- Viridian
 

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Same problem here too. Although if I rub the sore area too much or even at all often I end up with a bruise. No one here seems to go with the narcotics, but even with a PCA the pain gets through. I've lowered my steroids and am waiting for Imuran to kick in. Anyone else find a solution?
 

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jmaca
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I've never found anything that works 100%. :( NSAIDS have never touched that pain, and prednisone, not surprisingly, made it worse.

The one thing that's helped - and I'm a real doubting Thomas type, so I doubted it would work at first - was changing my diet. I eat a mostly Asian-type diet now: rice instead of wheat, lots of veggies and fruits, little to no dairy. Most of my soft tissue pains went away after a month on that diet. I'm no longer rigidly on it. I eat what I want on weekends, but stick to it during the week. It's been one and a half years, and I'm still doing pretty well, considering how very bad it was before. I had reached the point where most of my body felt bruised, but now it's back down to a manageable level.

Still, it would be great to have it all gone. I know what you mean about fearing being touched by your partner! My poor husband is a very bony fellow, and sometimes all it takes is for his elbow or knee to touch my skin and I'm howling from the pain of it.
 

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heya... I sooo have these problems...when my lupus is flaring i get so sensitive, i cant bare to be touched! it hurts sooo much just to be cuddled...and if someone accidently bumps into me its agony!! but obviously you cant say anything!! Also i totally get the pain in between the bones on your arms!!! i wonder what causes these things! its only when im in a flare! xxx
 

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Add me to the club, Viridian.
Thank you for mentioning this as I really thought I was just bonkers.
And maybe I am, but at least someone else has the same problem.
Colourless invisible bruising. Nuts!
Douglas+
 

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Discussion Starter #11
Jmaca - Will def try the diet thing after I go to London (dont want to change anything just now because I'd like everything to be the same as it always has been). It's not that it happens all the time but I get bouts of it, and if I can prevent it from happening (or as bad) in the first place then brilliant. It's horrible having your joints aching, your rashes flaring and all you need is a warm bath but the feel of water repels you!
Anyway, thank you for the advice!

Mooks - When I find out more, I'll let you know! Like you say, you cant tell anyone, you just have to hide behind a wince! :(
Glad someone gets my reference about 'between the bones' thing. I feel odd just saying it! :lol:

Douglas;523380 said:
Add me to the club, Viridian.
Thank you for mentioning this as I really thought I was just bonkers.
And maybe I am, but at least someone else has the same problem.
Colourless invisible bruising. Nuts!
Douglas+
Wow! Someone else with the same. I really didn't think I'd get this many replies. Guess we're all in it together. Loopy or not!;)
 

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Curious

Hi I have just been searching the web trying to find out if anyone experiences the same sort of pain I have. I have actually had it all my life but I was not aware that it was not the way everyone felt until I found my cure. As a child I always wondered why anyone would like being tickled as I had always found it very painful. The symptoms you are describing are the closest I can find to describing how I felt.
Anyway a couple of years ago I gave up processed carbohydrates (rice, bread, pasta including wholegrains and nuts) in order to lose weight. I gave up all starchy vegetables like potatoe and bananna as well. I eat sweet potato and carrots and all other fruits. I did lose a lot of weight but more importantly I realised my skin no longer felt bruised or tender and I could play with my kids without getting hurt everytime one of their little elbows hit my ribs. I also stopped getting headaches and my general moods improved (that could have been a result of feeling better.) Since then I have experimented and I have discovered that just a couple of pieces of bread or pizza will mean that my skin feels bruised the next day. The more I have the longer it takes to get rid of however it is not more than a couple of days before it feels normal again.
I would be interested if you finding out if it works for any of you. It is not an unhealthy diet as I eat a lot of vegetables and fruit, as well as protein and dairy (mostly low fat milk, not a lot of cheese). I have not been diagnosed with any disorders that are meant to cause this and often get treated like a nutter by doctors if I discribe it. However I have tried going back to many times to deny the effects and I would prefer to live without the carbohydrates than go back to the headaches and tenderness.
Joan.
 

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I also have the same problem with the tenderness, but no bruises I have put it down to having Fibro.

Gentle hugs
Sheila :)
 

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continually sore

If you are experiencing this I can only say that it might be worth trying a similar change to your diet for a about a month just to see if it works. The first week was terrible as I really like bread and it made such a large part of my diet,however as I started to feel better I also stopped craving the processes carbs and starch. I even worked next to a bakery at the time and I was suprised when the smell no longer tempted me. I have periodically fallen back into eating carbs etc on and off however the pain I experience the next day is enoungh to remind me to stop.
If you do try it and please let me know how you go as I would like to know if others experience the same problem with this type of food.
Trish
 

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I can relate!

Hi!

I was just having this same symptom the other day and am glad to hear someone else has it (that I'm not being a hypocondriac). My recent bruiseless spot was on the side of one of my thighs, so everytime I walked I felt this slight twinge of pain. No redness or swelling. Just tenderness when muscle is used.

Mine come and go, as do most of my symptoms.

Monica
 
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