The Lupus Forum banner
1 - 7 of 7 Posts

· Registered
Joined
·
23 Posts
Discussion Starter · #1 ·
My neurologist suggested a long acting pain patch. I believe she said phyntenl. Has any one else done well with this med. And does it really help for a good lenght on time?

Thanks for your help!
Katie
 

· Registered
Joined
·
4,968 Posts
I have a lot of GI issues that are preventing me from taking pain meds by mouth so I just started this patch. I can not yet tell you how good it is but you put it on and leave it on for 3 days of continuous pain relief.

If you asked this question next week or thereafter I would have had a better answer for you. I can tell you that so far, no problems with sickness or side effects but it really is to soon for me to voice a opinion on this for you, sorry.

Good luck to you with using it. I hope it works and gives you relief.
 

· Registered
Joined
·
330 Posts
I've been on the fentanyl patch for a period of time. It does work very well. I recently switch to hydromorph contin (long lasting morphine) and it didn't help as much as the patch, so I went back to the patch. So, it does really work. Let's just say you'll know if you forgot to change it on the 3rd day.:eek:uch: That's the biggest challenge with my brain fog. It's better than popping pain meds every 3 hours like I was doing before.

What dose are you on? If it is much higher than what you are used to taking you may be groggy a bit before you get used to it.

Also, never put it on your chest near your heart. I did once and I thought I was dying. That was one very scary night. Luckily I soon figured out it was the patch before we called an ambulance.

I think you will be happy with it. Just write down which day you put the new patch on. In the hospital, they marked it right on the patch. Not a bad idea!

Good luck.

Annette
 

· Registered
Joined
·
23 Posts
Discussion Starter · #4 ·
Are you able to do more? I guess what i am asking is that it isn't so strong that you are not able to be more active or is it the opposite. That it allows you to be able have a higher quality of life. Allowing you to do more things without having to go to bed or curl up in the fetal position because you were more active today? Does that make sense?
 

· Registered
Joined
·
4 Posts
I have been on the fentanyl for quite a while and it has been a god send. There is no high feeling or knocked out, just general feeling good. It had greatly reduced my pain. I was on it for several months and had to switch to md contin due to insurance and was miserable the entire time. My dr said my insurance wouldn't cover the fentanyl even when I argued that it would since I had called to verify coverage. I changed dr's and he immediately put me back on the patch and I feel much better.

I am on the 75 mcg dose and use the md contin as breakthru, I have to take that by the third day as I can really tell a difference. A lot of people have to change it every 2 days. Remember, this was made initially for cancer patients that were sometimes confined to bed with little activity.

Also the brand of generics that you may get differ greatly. I use either the Watson or Sandoz which have the medicine in a gel pouch and is made like the brand name Duragesic. Mylan makes a generic that does not work for me at all, the patch is smaller but the med is mixed with the adhesive and it just doesn't work for some.

Didn't mean to write a book but yes I have a better quality of life on the patch and would recommend that anyone at least try it if nothing else works. It is a strong pain med and the only down side is that you have nothing else to step up to except stronger dosage of this drug.
 

· LupusLyn
Joined
·
28 Posts
I took the fentanyl patch for about three years. It really helps but the side effect I had was sweating. I stayed on it and my Dr. gave me a pill that helped reduce the sweating side effect. It is very convenient as you don't have to remember to take pills, therefore you don't have the ups and downs that pills give you.

I usually placed it on my upper arm. I sometimes had to take rubbing alcohol and clean that spot to get it to stick better. Especially if I had lotion on.

I used several different dosages from 25 to 100. (The 100 was when I had pancreatitis.) You would probably want to start low and then work your way up.

I can't tell you how much it was because I just had to pay my copay. Sorry!

Lyn
 
1 - 7 of 7 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top