Hi
firstly appologies for dipping in and out of the group,
and for coming here to request help more than offerring it.
I am afraid there is so much happening in our life at the moment I have not been able to give very much.
Yesterday I ahd a rhuematology ppointment. My symptoms have escalated dramaticall over recent weeks and my pain has been severe and unrelenting...i know I am not alone in that but I have been coping less and less.
the Rhumatologst was lovely...he was very concerend by the amunt of inflamation in my feet and hands and that has always ben my worst bits. He is also cncerend about my dizziness and los of balance. So we have increased plaquenil to 200 am 100 evening. gone back onto predniselone and now introduced fentanyl patches.
He did warn me that the side effects could be severe at the start and he was not wrong. he suggestd these would subsid over the first week...I hope he is right. I can cope with the drwsinss i am exhausted all the time anyway so solong as the drowsnees spaced out feeling subsides over the week to allo me to drive again that will be fine. The nausea and vomiting though is really trying! i have always had a fear of vomitting...I suffered from severe sickness in pregnacy that saw me admited to hospital for fluids iv. however, he pain relief has been nothing short of miraculous...I can walk up and down the stairs without crying in pain. I think I can even pu up wih the vomiting if I can be rid of that pain. My ankles and wrists are sore but nothig like tey were but I can almost straihten my fingers and I can put one foot in front of the other without that searing pain.
thanks for listening!
hugs
firstly appologies for dipping in and out of the group,
and for coming here to request help more than offerring it.
I am afraid there is so much happening in our life at the moment I have not been able to give very much.
Yesterday I ahd a rhuematology ppointment. My symptoms have escalated dramaticall over recent weeks and my pain has been severe and unrelenting...i know I am not alone in that but I have been coping less and less.
the Rhumatologst was lovely...he was very concerend by the amunt of inflamation in my feet and hands and that has always ben my worst bits. He is also cncerend about my dizziness and los of balance. So we have increased plaquenil to 200 am 100 evening. gone back onto predniselone and now introduced fentanyl patches.
He did warn me that the side effects could be severe at the start and he was not wrong. he suggestd these would subsid over the first week...I hope he is right. I can cope with the drwsinss i am exhausted all the time anyway so solong as the drowsnees spaced out feeling subsides over the week to allo me to drive again that will be fine. The nausea and vomiting though is really trying! i have always had a fear of vomitting...I suffered from severe sickness in pregnacy that saw me admited to hospital for fluids iv. however, he pain relief has been nothing short of miraculous...I can walk up and down the stairs without crying in pain. I think I can even pu up wih the vomiting if I can be rid of that pain. My ankles and wrists are sore but nothig like tey were but I can almost straihten my fingers and I can put one foot in front of the other without that searing pain.
thanks for listening!
hugs