TheLupusSite.com banner

1 - 2 of 2 Posts

·
Registered
Joined
·
68 Posts
Discussion Starter #1
I was diagnosed with fibro. a few years back. At that time it hit me like a ton of bricks. I was exercing 5-6 days a week for almost 2 hours. I knew I was tired and inpain but I just figured it was from overexercising. I kept pushing cause I was losing weight. The finally one day the pain was so bad I had to stop. I went through pain in my joints, tremendous pain in ribs,chest and back, hip pain and wrist pain. Soon after it hit I was unable to workout.

My reheum. has checked me for lupus every year for a few years now.

The only thing that helps me with pain is a perscription anti-inflam. med. but I had to stop taking it cause it was causing alot of swelling in my feet, ankels and calves.

Since the diagnoses of FM I have been diagnosed with gastroparesis. This is a rough one to manage. Either I eat and feel awful or I eat very little and feel half way ok. The bloating is awful.I look like I am having a baby. I vomit up food at night if I eat a heavy meal.

I was also told I have dysautonomia. I went to a specialist and she feels that was a wrong diagnoses.

I just want to be ok. I want to have energy to workout. I have been back in the gym recently but my energy level is low. I am starting to have more pain especially in my hips. If only I could take the anti-inflam med. my orthoedic dr. perscribed for me then I could get through this without as much pain.

I just hope to get some answers in March that is when I go back to see my reheum. Maybe then I will know what to do next.
 

·
Registered
Joined
·
149 Posts
Are you getting any help with the gastroparesis? I used to feel like you with it, but now take metoclopramide (reglan) before every meal. It helps with stomach emptying and means I can eat a fairly regular (though still small) meal without feeling awful. I also have problems with bowel motility too, and need to take movicol every day to keep things moving lower down as well.

With the antiinflam meds (I presume these are NSAIDs?) there are definitely more than one type of these, and you might find that one suits you better than another. I now take a slow release diclofenac and that works for me, but you could ask your doctor to try you on ones you haven't had before.

With the exercise, I'd suggest you try and see a physio to work out what exercises help with fibro and what doesn't, then you can make a programme that suits you better without damaging your body further.

I'm not sure if I can answer any other questions for you. I'm still in diagnostic limboland myself.
 
1 - 2 of 2 Posts
Top