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Discussion Starter · #1 ·
Hi everyone!

I have been experiencing pain in specific symmetrical areas on my body. The places feel bruised when pressed. Someone pointed out to me that the points might be related to fibromyalgia. I looked up the pressure points used for FMS evaluation, and several of my painful areas do correspond.

I'm not really experiencing much muscle pain, except for my neck. The muscles around my hips can really bug me if I do much exercising. My Achilles tendons hurt me, too. That's it, though.

Does fibromyalgia develop over time, or does it begin suddenly?

Terri
 

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Hi Terri:)
I just did a quick google on Fibromyalgia onset and it seems it can either come on gradually or suddenly. Here are a couple of links which explain.

http://www.arthritis.ca/types%20of%20arthritis/fibromyalgia/default.asp?s=1

http://www.fmaware.org/fminfo/brochure.htm#causes

I have Fibro as well as SLE and it can be one painful condition let me tell you! My worse pain is in the shoulders and neck but each person can be different. It would be worth your while talking this over with your doctor. As you already know the only diagnostic tool is the pressure points test and a good specialist would be able to assess whether you have Fibro or not. There are medications that can help because fibro isnt only about pain - it also causes sleep problems as fibro patients cannot get into fourth stage sleep and therefore wake up feeling exhausted. The medications are low dose anti-depressants, e.g. amitriptyline. They are usually prescribed for fibro at a much lower dose than the therapeutic dose for depression. What are your sleep patterns like?

Anyway, best of luck. Get it checked out at your next appointment.

Take care
Luv n stuff
Joan:rose:
 

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I have fibro too. The onset & symptoms do vary for each person. Do ask your doctor about it. There are meds that can help.

Sharon
 

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Hello Terri,

I have fibrromyalgia also.......looking back I had some early signs but the doctors were looking in the direction of CNS Lupus or Hashimoto Encephalpathy(?). My first real flare liked to knocked me on my feet. I was in a lot of pain and felt like fatigue was going to take over my life.

Please discuss oury sx. with ouyr doctor.....if it is fibromyalgia then ouy start treatment straightaway instead of waiting for a big flare and waiting for hte doctors to figure it out then.

God Bless,
Deb
 

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Hi Terri,
I don't have fibro but wanted to tell you I'm thinking of you and sending you some hugs.:hug:
Take care,
:flowery:
Lyn
 

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sorry to hear you may have fibro, it stinks . i like the others that have posted do have both and I would advice you to speak to your rheumatoligist for a dx, I tried amitriptiline 5 years ago for fibro but wasn't good on tem, they made me really itchy like excessively, and I couldn't sleep at all. i am now on methotrexate, Nabumetones and plaquenil, tramadol and other drugs for asthma, HS etc.
 

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I learned something!

I've had fibro for years (along with SLE) and I never knew that fibro can cause sleep difficulties. I'll have to talk to my dr. about this...I wake up every 1/2 hr and never wake up feeling fully rested.
 

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Hi, Terri:blush:

I have fibro, SLE and osteo. The OA and SLE affects my joints and the fibro works on the muslces and connective tissue. So, consequently, everything I have is sore and aching.

Fibro is sometimes worse the the lupus. My lupus is controlled with Placquenil and Methotrexate. I also take for the fibro Cymbalta, Zanaflex and Lyrica. I take Wellbutrin and some other meds for blood pressure and the like also.

Fibro is very painful. You hurt, you tense, you hurt more. Try to relax, use heating pads and don't get chilled. I wish you luck and am sending you (((((((soft hugs))))))). (wouldn't want to cause you any more pain:p )

Cathy
 

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I have fibro and the symptoms had been coming on for yrs especially in my thighs. When I had my first Lupus flare the fibro hit in full force at every pressure point there is. I haven't been able to get the fibro undercontrol and really acts up with weather changing, stress, and lack of sleep. I hope you don't have fibro and if so can't get some relief. There are a lot of people that get there fibro undercontrol and others that can't.

Jen:pansy:
 

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Fibromyalgia question

Can someone please explain the difference between fibro and neurofibro? I friend's family member has been diagnosed with neurofibromyalgia. Also, a friend who has been diagnosed with pancreatic cancer was told that fibromyalgia was totally caused by stress. Is this true? I know a lot of you suffer with fibro, and I am sorry if this is an insult to you. I don't believe it is a total stress result, but I know that stress can aggravate it. I have only dealt with SLE--and I hope there is nothing else coming.


Stay strong, and keep a positive attitude.
:)
Sandra
 

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HI,

Like Lily, I've never heard of neuro fibro - maybe you could ask the name of your friends condition again?

Here is a link to info about fibro....
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html

There is a lot of misinformation and predjudices out there even (especially?) amongst doctors and others about fibro. There are also a lot of unanswered questions, sch as how CFS/ME and fibro are related.

We humans are complex beings and the description of physical, psychological and spiritual (or what ever labels you choose) does not always fit well with the truth about how something works. There is undoubtably some interaction between our thoughts and our physical sensations. This goes for eveyone - with or without fibro. That fibro is "just stress" is NOT correct however. It is a deal disorder with treatments that actually help, and those with it deserve access to the right treatment.

Hope this helps,

X C X
 

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Hi Terri,

I was dxed with fibro nearly a year ago, my symptoms arrived suddenly after a birth and a berievement. I was told that trauma either mental or physical can trigger it and yes it can come on suddenly.
I have pain all over my legs suffer the worst though, but it depends on the day , I never know what it will be from 1 day to the next I take each day as it comes.
I am on several different meds to combat pain, depression and sleep also constipation :( . Speak to your rheumy if you have 1 thats who dxed me in the end after a very painful examination of pressure point tests :tears:

I hope you find relief soon as I know how much pain you are in.
Lots of love
Dawn :hug:
 

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I too have been diagnosed with lupus, fibro and myofascial pain syndrome at the Mayo Clinic.

I was there for a second opinion. I just couldn't believe that I had lupus.

Anyway, I told my rheumy what they said and he said two things.
1. Myofascial pain and fibro are one and the same. NOT!!
2. Sometimes fibro flares can be much more painful than lupus flares.

I am on antidepressants and seizure meds to treat the pain. Sometimes, I think that they are really working. Other times I wonder.

So.....um...I totally forgot what I was going to say!!:rotfl:
Hugs to you! (soft ones!)
Shelley
 

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Discussion Starter · #15 ·
Update

Thank you everyone for your replies. The fibo diagnosis took me by surprise, and I didn't quite know what to think about it.

I've since been back to see my regular doctor, who does not believe I have fibro, mainly because I am not having muscle pain. My joints hurt, but not my muscles. So now I'm waiting on a referral to start the second opinion process, since the rheumy emphatically says I cannot be sick because only my ANA and anti-SMA were positive. He completely dismissed the rest of my symptomsafter seeing the lab results. He even thinks my 1:1280 ANA was a false positive.

Terri
 

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Fibromyalgia

I've had fibromyalgia for approx. 16 years since just after my daughter was born. Never felt it was taken seriously as I was told by GP it meant unexplained aches and pains in the body. Always felt like a fraud (and still do) when giving same list of symptoms. One time when visiting a GP I'm not keen on, she looked at the repeat of my symptoms and told me I wasn't telling her anything new. I ended up in tears and no further forward until last year when discoid lupus appeared. It just so happened this particular doctor was the only one available for an emergency appointment and I was taken aback after examination when she suggested I could be suffering from "a lupus"., and she did a referral letter to dermatology. I've only gone to her in an emergency when no other doctor has been available. I have noticed though, since discoid lupus was diagnosed, her attitude has softened (slightly). It seemed as though she only started taking my symptoms seriously once I had been diagnosed with lupus.
 

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I know how you feel. I was sick for years but ignored it. The last few years was the worst and I even asked about my rashes, but since my GP didn't know much about it he took it as just that I get sick often.

I don't blame him, but everything came together after I had my stroke and had my rash biopsied after they admitted me and saw my butterfly rash. 20 years ago I did see a dermatologist and he immediately mentioned lupus and wanted to do a biopsy of my nose, but being only 20 I didn't want anybody to cut a piece of my nose. I was too vain. If I had let him, I would have been diagnosed then.

Now I just roll with the punches and hope to stay as healthy as I can and now when I have a simple cold and can taste the illness, I go in and get treated ASAP to avoid anymore flare ups.

Good luck to you.
Ruby
 

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Fibromyalgia

With Fibromyalgia you get so many other symptons that it can floor you. It never goes long without other things comming at you. I don't know what more then 3-4 hours of sleep is. I went to a sleep clinic just recently and it was a horrible experience. I knew I didn't have sleep apnea but hoped they could find some reason for it. Well no luck it's chronic insomia. If I could afford Ambien to take a whole one I would get 3-4 hours of sleep . I take one darvocet, half of promathaine, flexeril, and half of ambien and still only get about 2 hours of sleep. I am in constant pain. I feel bad for anyone who goes through this. I dosed of for about an hour at the sleep clinic . I was hooked up at 10 PM and around 5 AM I dosed but didn't go into a sleep. I took all my pills that night except ambien. It is the only thing and I have tried several antidepressants with awful results. It ambien is the only thing that ever made me fall to sleep at all. My insurance won't cover it its really expensive.I have fibromyalgia, osteoartheritis, ostoporrosis, pernicious anemia, iron deficiency annemia, tmj, myofascial pain syndrome, myositis, My ankles rotate when I put weight on my feet so I'm flat footed forget the name for it,scolosis, Acid reflux, irritable, spastic colon, hypothroid, raynauds, Meneopausal,discoid Lupus,fuch's Coneal Dystrophy,phrephial neuropathy, psoriatic artheritis, and just missed an appointment to get checked for Rheumatoid artheritis.Every day it a chore and I'm still fighting to get disability. I went before the judge in 1996 before a lot of these problems and won my disability but they gave me SSDI which dependes on my husbands paycheck as a result I ahvent had a check for over three years. I'm fighting for SSI and they tell me I probably won't get it, how sad eh.
 

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Fibromyalgia

:hehe: Years ago it seems like centuries,:hehe: I was told to go home and live with it. I tried but couldn't I ended up doctor hopping which did not help me. You see it's all in your head they told me. Well my head did get faulty but it was in my right shoulder blade and up into the neck at first. I was in a severe car accident and was told it probably started it . I was 12 then now I'm alsost 50:hehe: However my sister was diagnoised last year with fibromyalgia. My dad had a sister whos girl had it and now the girls son has it. My son has it. My mom had a sister with it and her girl has it. I know they are going to find it is indeed running in families so genetice have to play a great part in it. Although an illness ot trauma might set it off. Anyway I was five months pregnant and 27 when I couldn't lift my arm to blow dry my hair. Then I got a lump the size of a grape in my shoulder blade and was told it was an encased tumor. I had to wait until I delivered the baby for surgery. Antway it grew to the size of my fist and you could hold it in your hand. The cancer doctor did the surgery and on the way into surgery I had several interns with their request to feel it:blush: Anyway when they opened me up it was my muscles in knots all the way through the chest wall. They didn't know what it was and tried to unknot them. I was told later it was he worse possible thing that hey could of done. Go figure I was 26 then. Anyway from there on it went to the left side same place. Now it is in every muscle in my body both sides the neck shoulders and lower back the worse. I get little lumps and bands you can roll like a tight rubberband. I tried chriopractors and physical therapy and left because it hurt so bad . The tens almost killed me and I couldn't walk after it. Amatripline was terrible tramadol doesn't work. Tried so many things like several antidepressants I not only didn't sleep but had so many bad experiences that I came off them all. I took bursitis and tendonitis in my shoulders and bach and can barly function some days. But moving has to be done or you will seize up and not be able to move. Heat helped for awhile but made me tighter. Cold froze me so bad I couldn't take it. So what do you do well you try everything and everyone is very different what doesn't work for me might be a miracle for you. So don't be scared to try things. Also muscle relaxers like Soma helped but my insurance won't pay for it. I take a half of ambien, a 1/4 of phenergan, flexril, a darvocet since I couldn't take the terrible itching of Oxecodone which worked wonderfully even with benedril it was terrible. I take tylenol during the day and it's useless.I still only get 2 hours of sleep. Ambien was the only thing that actually knocked me out. I have to warn you though a whole one was wonderfull within an hour I was out for 4-5 hours. However I did so many stupid things I don't remember doing and never remembered a thing. My kids told me I hallucinated terribly and acted like a complete fool. I even did things like going up or down stairs falling. I was bruised and diddn't know why. Then one night I opened acan of bright yellow paint and wanted to only put one brush on the wall to see what it looked like. Well I fell and somehow went to bed and the next morning I couldn't believe my eyes the paint was all over my table and wood on my wall as well :worried: I went down to the basement one night and got my Christmas decorations and decorated my living room beautifully. I had to have went up and down at least 5 times to the basement and the next morning I gave my kids a huge hug and thenked them for the great surprise. I was dumfounded when I found out I did it. I could give you horrbile stories about ambien and night eating everything in the house. Anyway I still take a half because the alternative is no sleep more pain. I have been on it for over 6 years. I rub biofreeze on it helps some at bedtime. I have a fake memory foam mattress pad. Barb

I have fibromyalgia, myositis, myofascial pain syndrome which all fibro get eventually, hypothroid, tmj, mitralvalve prolaspe, osteoartheritis, psoratic arthitis, possible RA, discoid Lupus, not sure maybe SLE not determined yet, Pernicious anemia, iron deficiency annemia, osteopososis, GERD, iBS,spastic colon, raynauds,phrephial neuropathy, scolosis three curves, fuch's corneal dystrophy, canker sores all the time, chronic insommia, headaches and sick stomach all the time, Sinus problems , only have 14 teeth left, middle ear problems, orthostatic hypotension,vertigo,
 

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Fibro/sleep

Bluenoser100....I know exactly what is going on with the Ambien......I did things I never would havs thought possible....eating, cooking w/ gas stove,
falling and other stuff. I cut my hand one nihgt and my dad said "don't ever take that medicine again"....now I just take half. I have to get some sleep or I will go nuts
 
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