Fibromyalgia
:hehe: Years ago it seems like centuries,:hehe: I was told to go home and live with it. I tried but couldn't I ended up doctor hopping which did not help me. You see it's all in your head they told me. Well my head did get faulty but it was in my right shoulder blade and up into the neck at first. I was in a severe car accident and was told it probably started it . I was 12 then now I'm alsost 50:hehe: However my sister was diagnoised last year with fibromyalgia. My dad had a sister whos girl had it and now the girls son has it. My son has it. My mom had a sister with it and her girl has it. I know they are going to find it is indeed running in families so genetice have to play a great part in it. Although an illness ot trauma might set it off. Anyway I was five months pregnant and 27 when I couldn't lift my arm to blow dry my hair. Then I got a lump the size of a grape in my shoulder blade and was told it was an encased tumor. I had to wait until I delivered the baby for surgery. Antway it grew to the size of my fist and you could hold it in your hand. The cancer doctor did the surgery and on the way into surgery I had several interns with their request to feel it:blush: Anyway when they opened me up it was my muscles in knots all the way through the chest wall. They didn't know what it was and tried to unknot them. I was told later it was he worse possible thing that hey could of done. Go figure I was 26 then. Anyway from there on it went to the left side same place. Now it is in every muscle in my body both sides the neck shoulders and lower back the worse. I get little lumps and bands you can roll like a tight rubberband. I tried chriopractors and physical therapy and left because it hurt so bad . The tens almost killed me and I couldn't walk after it. Amatripline was terrible tramadol doesn't work. Tried so many things like several antidepressants I not only didn't sleep but had so many bad experiences that I came off them all. I took bursitis and tendonitis in my shoulders and bach and can barly function some days. But moving has to be done or you will seize up and not be able to move. Heat helped for awhile but made me tighter. Cold froze me so bad I couldn't take it. So what do you do well you try everything and everyone is very different what doesn't work for me might be a miracle for you. So don't be scared to try things. Also muscle relaxers like Soma helped but my insurance won't pay for it. I take a half of ambien, a 1/4 of phenergan, flexril, a darvocet since I couldn't take the terrible itching of Oxecodone which worked wonderfully even with benedril it was terrible. I take tylenol during the day and it's useless.I still only get 2 hours of sleep. Ambien was the only thing that actually knocked me out. I have to warn you though a whole one was wonderfull within an hour I was out for 4-5 hours. However I did so many stupid things I don't remember doing and never remembered a thing. My kids told me I hallucinated terribly and acted like a complete fool. I even did things like going up or down stairs falling. I was bruised and diddn't know why. Then one night I opened acan of bright yellow paint and wanted to only put one brush on the wall to see what it looked like. Well I fell and somehow went to bed and the next morning I couldn't believe my eyes the paint was all over my table and wood on my wall as well :worried: I went down to the basement one night and got my Christmas decorations and decorated my living room beautifully. I had to have went up and down at least 5 times to the basement and the next morning I gave my kids a huge hug and thenked them for the great surprise. I was dumfounded when I found out I did it. I could give you horrbile stories about ambien and night eating everything in the house. Anyway I still take a half because the alternative is no sleep more pain. I have been on it for over 6 years. I rub biofreeze on it helps some at bedtime. I have a fake memory foam mattress pad. Barb
I have fibromyalgia, myositis, myofascial pain syndrome which all fibro get eventually, hypothroid, tmj, mitralvalve prolaspe, osteoartheritis, psoratic arthitis, possible RA, discoid Lupus, not sure maybe SLE not determined yet, Pernicious anemia, iron deficiency annemia, osteopososis, GERD, iBS,spastic colon, raynauds,phrephial neuropathy, scolosis three curves, fuch's corneal dystrophy, canker sores all the time, chronic insommia, headaches and sick stomach all the time, Sinus problems , only have 14 teeth left, middle ear problems, orthostatic hypotension,vertigo,
