Hello Everyone!!!!
It has been a long, long time since I've been on the boards. So many of you don't know me and I hope many of my old friends are still here.
Believe it or not I've finally gotten a full dx today. I was dx. as hashimoto thyroid about 10 years ago and fibromyalgia 5 years ago ........but I still suffered from unexplain neuro. pain.
I had more testing done 6 weeks ago and got the results today. I have been dx with hashimoto encelphalpathy (sp?). My bloodwork came back and my anti-bodies are double what it should. I am also showing a restriction of some of the arteries in the brain. He feels this is a result of the HE.
He is going to start me 60 mgs of predisone and ween me off in two weeks. He is hoping to put it remission without having to have me on long term predisone. If that doesn't work then he will decide if I should go on long term predisone treatment or try the plasma transfusion.
It is frustrating to think of the run around I've gotten over the years. The doctors were all so sure that this wasn't the problem and dismissed it. Now it turns out it has been the problem all along.
There will be permanent memory loss........but hopefully things will start to look up.
I will try to let you know how things go.
Love,
Deb
It has been a long, long time since I've been on the boards. So many of you don't know me and I hope many of my old friends are still here.
Believe it or not I've finally gotten a full dx today. I was dx. as hashimoto thyroid about 10 years ago and fibromyalgia 5 years ago ........but I still suffered from unexplain neuro. pain.
I had more testing done 6 weeks ago and got the results today. I have been dx with hashimoto encelphalpathy (sp?). My bloodwork came back and my anti-bodies are double what it should. I am also showing a restriction of some of the arteries in the brain. He feels this is a result of the HE.
He is going to start me 60 mgs of predisone and ween me off in two weeks. He is hoping to put it remission without having to have me on long term predisone. If that doesn't work then he will decide if I should go on long term predisone treatment or try the plasma transfusion.
It is frustrating to think of the run around I've gotten over the years. The doctors were all so sure that this wasn't the problem and dismissed it. Now it turns out it has been the problem all along.
There will be permanent memory loss........but hopefully things will start to look up.
I will try to let you know how things go.
Love,
Deb