So, most of you know my crazy, maddening, long struggle to find a Dr and some answers. I mentioned in a couple of my last posts that I wrote to a Dr in NY. He asked yesterday for my "medical story" in my own words of how I got to be here, and for the actual numbers of the blood test results, as well as better (digital) copies of the photos of my rash (face and legs). He wrote back this morning and said "There is plenty of smoke in your story and photos, so it seems worth the effort to look for the fire." 
Then went on to say, "Names and contacts, with comments, are below. One or another of them might be able to direct you to someone who can evaluate you, even without insurance. You can use my name for those I indicate, since they are personal friends or acquaintances."
Like... what? !!
I've spent years being told it's in my head. Being told to stop whining, to get over it, to just get on with life. Now, suddenly, I have validation of everything and I can't stop crying. It's what I wanted (yet, didn't want) so badly. It's... kind of like being hit in the face with a brick. I knew it was coming, but so totally hoped it wouldn't.
Now, I just need to contact the doctors he mentioned. I think I'll write to them today. It's just so... crazy. I never thought he would reply, and I certainly didn't think he would take me seriously.
Maybe there's a way through this after all... :blush:
Then went on to say, "Names and contacts, with comments, are below. One or another of them might be able to direct you to someone who can evaluate you, even without insurance. You can use my name for those I indicate, since they are personal friends or acquaintances."Like... what? !!
I've spent years being told it's in my head. Being told to stop whining, to get over it, to just get on with life. Now, suddenly, I have validation of everything and I can't stop crying. It's what I wanted (yet, didn't want) so badly. It's... kind of like being hit in the face with a brick. I knew it was coming, but so totally hoped it wouldn't.
Now, I just need to contact the doctors he mentioned. I think I'll write to them today. It's just so... crazy. I never thought he would reply, and I certainly didn't think he would take me seriously.
Maybe there's a way through this after all... :blush:
