Good Luck MaZ, I really do hope you get some answers. See you are Norfolk area, so assume you would use the Norwich Hospital? I may have read wrongly, but sounds like you did not have a satisfactory time there. Should it come to it, I can recommend a truly outstanding Rheumatologist but based in Cambridge. You are remember, at liberty to ask to be referred wherever you choose, and at any hospital, your only consideration I guess would be travel.
Good luck with your journey
Good luck with your journey