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Discussion Starter · #1 ·
Got some of my blood results back today and my doctor wants to see me tomorrow to discuss.

One of the liver function tests was abnormally low, and EcR (?) one of the inflammation markers is very elevated.

Still got numerous aches and pains (neck and pain are extremely painful at the moment), dry skin and rashes all over, including the 'butterfly' type facial rash and the top of my legs are covered in what can only be described as hundreds of red pin pricks. On top of this feel incredibly tired, dizzy and sick - oh and my glands are still enlarged and sore.

It's been so hard trying to get taken seriously. Been to see a thyroid specialist as my thryoid was extremely under (i.e. not working at all) and had thyroxin increased over the past few months which now, thankfully the thyroid is normal, but I'm still feeling awful (with the symptoms above).

So, what should I do now. Should I ask to be referred to a lupus specialist? Is there such a doctor as a lupus specialist?

Can anyone offer any advice?

Thanks

Clara
 

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Hello Clara,

The specialists who deal with lupus and other auto-immune diseases are usually rheumatologists. You need to try and get referred to one who specialises in auto-immune diseases.

There is a "find a lupus doctor" section here on the boards where you cen see if anyone knows someone in your area.

keep us posted on what the doc says tomorrow. At least it sounds like he/she is taking you seriously, so maybe ask for a referral to a rheumy?

Katharine
 

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Dear Clara,

I have seen both Dr. D'Cruz and Prof. Hughes in london. I would recommend either.
Yes, quite right Lupus Specialists are much better for us than general Rheumatologists, some of whom have very little experience of Lupus.
x Lola
 

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Discussion Starter · #5 ·
Thanks Lola.

Went to the GP today who advises it will probably be another 1-2 weeks before the rest of the bloods are back, but it is looking like lupus.

He has agreed to refer me to see either Professor Hughes or Dr. D'Cruz but wants to wait until the full results are back and he will put that all in the referral.
 
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