The Lupus Forum banner
1 - 17 of 17 Posts

·
Registered
Joined
·
65 Posts
Discussion Starter · #1 ·
Hi all

Since all the swine flu going around, it made me think about the normal flu so I called my g.p and asked if I should have the flu jab and they said yes, I have never had the vaccine and never even thought about it until now. I asked them if I will be called up for the swine flu jab and they said no if you are in the at risk group then you have to go on a waiting list and they will call me, so I have put my name down on this. I also saw my consultant the other day and she said for me not to get the flu jab but to get the swine flu jab, I am just so confused, what do I do I have never had the flu and I have never had a vaccine.

My concern about the swine flu vaccine is that it has not been tested on anyone with lupus or anyone with an underlying medical condition.
 

·
Registered
Joined
·
788 Posts
I am of no help but figured I would respond.. because I have had the regular flu shot and every time I have had the shot I ended up with "flu symptoms" .. I use quotation marks because every one tells me its not the actual flu.. well I get fevers, chills, body aches, head aches and you name it.. it last a few days..
I stopped getting the vaccination about four years ago and since then I have had no issues.. as far as the swine flu goes I am guessing its probably not good for someone with a faulty immune system to catch this?! And so I will assume that we should get the vaccination ... but FOR ME, I am weary of anything "new" and do not feel like being a statistic.. I have already decided to stay away from it since I have had bad luck with the regular flu shot.. I am curious to see what others find out and post and I wish you luck with your decision.
 

·
Registered
Joined
·
4,968 Posts
I get the flu shot every year and should, per my Rheumatologist.

As for the swine flu vaccine I am afraid because of exactly what you said. It is new, not used on anyone before and until it has a couple years under it's belt I am not willing to trust that it will not have adverse reactions on us.

I also will be curious to see what others have to say. Interesting post.;)
 

·
Registered
Joined
·
3,471 Posts
yes i have the flu jab to, as rheumy and gp says too, Dont know about the swine flu though, its new!! Not even had the flu jab either yet, lol!! but i have to say it as stopped me getting bad colds through out the winter months,as i got loads of them, and if you get pleursiy a lot i think its got be worth it..... xxx
 

·
Registered
Joined
·
14,661 Posts
Often people who have had bad reactions tend to reply to this sort of thread so I'm just saying I have had annual flu vaccine for several years now except one year when it was in short supply and I reckoned other people needed it more than me. Pneumococcal too both advised by all of my various specialists and GPs. Flu and the pneumo are generally advised because we are more likely to suffer badly from it than healthy people and take longer to recover as well as flaring as a result.

I have had no bad reactions at all apart from a very slightly sore arm at the vaccination site especially if I prod it hard. :)

Some people do have a flu like reaction for a few days afterwards but that shows it is working. If you are severely immunosuppressed it might be recommended to have the flu vaccine twice early then later in the season because the body is less able to produce adequate protective, since all antibody production both good and bad is impaired.

As for the swine flu vaccine, it has been tested worldwide and shown to be effective ( antibody levels ) with no reports of adverse effects and the WHO has agreed to it. I can't see why it is fundamentally different from the seasonal flu vaccine which is 'new' each year in response to the different flu strains each year. I think this is a combination of several flu vaccines none of which are new in themselves. It strikes me that the political, social and public health climate has changed so much in the past 30+ years that a repetition of the 1976 debacle is highly unlikely.

I haven't thought much about whether to have the swine flu vaccination or not but I'm fairly low down in the priority groups, being over 60, not in at risk employment and not highly exposed in other ways or suffering particular diseases like lung problems. But I'll be at the top of that group because of the lupus and taking an immunosuppressant. My GP strongly recommends it.
It's simply a personal decision in my view, a question of whether to risk suffering from swine flu with whatever repercussions that almost certainly will have on your health or 'risk' the vaccine, which you have to decide for yourself.

http://www.alertnet.org/thenews/newsdesk/N10300533.htm

http://www.usembassy.org.uk/eande068.html

http://www.lupus.org/webmodules/webarticlesnet/templates/new_empty.aspx?articleid=2681

:)
Clare
 

·
Registered
Joined
·
7,800 Posts
I too have no reaction to the normal flu vaccine and don't even get a sore arm. My docs don't especially push flu vaccines and before I took immunosuppressants didn't ask me to get them done at all. However, this year I have been told that I absolutely must do both the seasonal flu and the swine flu vaccine.

I have already had the seasonal flu jab and will get the other done when it is available. I tend to have lung complications easily and wouldn't want to risk the complications linked to swine flu if there is any way I can avoid it.

Just my view of course and everyone has to decide as best they can with proper medical advice from their doctors.

Katharine
 

·
Registered
Joined
·
28 Posts
I spoke to my GP and he spoke to my
rhuemy who said that as long as I am not allergic to eggs or on prenisone then the flu vaccine is ok so I have booked mhy appt at the dr as he is doing as a clinic I also booked by teenage son as well. I had normal flu needle every year no prob and on 200mg of imuran daily so I will let you know how I go after the 24th that is when I get my jab
 

·
Registered
Joined
·
7,800 Posts
I'm curious as to why "not on prednisolone" ??

There are no contraindications for those on prednisolone and indeed people on high doses of prednisolone would be considered immunosuppressed and therefore in an "at risk" group.

Katharine
 

·
Registered
Joined
·
788 Posts
My father, my siblings and my self all get very sick so we were advised to stay away.. its been a few years-four and I have not had the flu at all.. only when I get the vaccine do I end up sick afterwards and with the real flu soon after.. BUT I am not against it.. My daughter gets it but not my son as he has the same blood disorders as I do and the very same reaction.. my husband and daughter do fine.. I am one of those people who do not enjoy vaccinations BUT will do them.. with lots of prayers LOL
I just read an article about the swine flu vaccine and cancer.. I will try to look that up and post it after my appointment
 

·
Registered
Joined
·
65 Posts
Discussion Starter · #12 ·
Thank you, you have been very helpful. When I do get sick I never get a flare not even one pain and I have heard the flu jab may give you a flare What are the risks of us getting the flu?
 

·
Registered
Joined
·
14,661 Posts
I think the risks are very individual. It depends on exposure, on how immunosuppressed one is and the mystery of why some people get these illnesses more than others, even healthy people. And, like most other things in life, luck.
I have no idea how much more likely one is to flare if you have swine flu than any other illness. If you dont usually flare then why should the risk be more. If you do get swine flu you are likely to be less affected if vaccinated.


:)
Clare
 

·
Registered
Joined
·
28 Posts
Hi to answer your question why prenisone? I have absolutley no idea I have had the normal flu shot whilst on steriods and was advised will need another one so maybe we can only have one swine flu jab and not two who knows I am seeing my gp on friday I will ask as to what the significance is re no steriods on swine flu jab
 

·
Registered
Joined
·
4 Posts
flu & swine vaccine

Prior to being diagnosised with Lupus 2/09, I never got sick. In 19 years the only antibiotics I've needed were for a trauma incident where I almost cut my fingers off, and 2 episodes of diverticulitis. Have I ever gotten a cold? Sure. A stomach bug? 24 hours, at most.
Since I have been diagnosised and placed on Plaquenil and steriods, I have been on antibiotics 5 different times!
I am so torn!
Don't get the vaccine and run the risk of catching the flu and having it become worse. (my last 'illness' was a chest cold that turned into walking pneumonia in 3 days)
Get the vaccine and run the risk of being susceptible to other illnesses for the following 3 weeks while my body 'builds' up enough antigens. Then do it all over again for the H1N1 vaccine!
I am a massage therapist and am figuring I will need to wear a mask all season; wonder how my patients will view that?
 

·
A bit loopy
Joined
·
38 Posts
As a "newly diagnosed", my mum got a call from the local surgery saying I was eligible for a flu jab - obviously they were offering the jab to people more vulnerable to the flu. I've never had a flu jab before and I went to have it today! :eek:

Not surprisingly, I didn't die lol. It was just a little prick...and that was it. Crisis over...for one year at least!
 
1 - 17 of 17 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top