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Discussion Starter · #1 ·
Hi everyone,

I'm really interested in trying quinacrine - I've already tried plaquenil and chloroquine. The plaquenil didn't do much; the chloroquine has offered some mild relief. The lupus mainly seems to affect my skin, and from what I've read, quinacrine really helps people with skin issues.

The main issue is I CANNOT FIND ANYONE WHO PRESCRIBES THIS DRUG !

I was wondering if anyone prescribed quinacrine can tell me their doc's name ?? So I can get in touch with that doc and see if he can recommend any colleagues. I'm in the NY/Philadelphia area.

I'm not sure if this type of posting is allowed, but I'm really hoping to get a few names!
 

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Hi,
I think you will have to find a compounding pharmacy. Google compounding pharmacies in your area to see where they are.
Take care,
Lyn
 

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Discussion Starter · #3 ·
Hi,
I think you will have to find a compounding pharmacy. Google compounding pharmacies in your area to see where they are.
Take care,
Lyn
Thanks for the reply. Unfortunately, the compounding pharmacy won't make it without a script from a doctor. The latter part is the part I'm having trouble with.
 

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Hi

My doc prescribed it for me. However, I am uk, London. That is probably too far to travel. Have you tried a dermatologist?
Also, as well as the drug treating both malaria and lupus it is also used to treat parasite infections caused by giardia. That might be another avenue to find a doc for.

The pills are very foul tasting, although they do give an energy boost.

Kind regards
Mark
 

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FKA Clare.T
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My doctor was in NYC, Dr Andrew Franks. He's retired now but his wife Dr Linda Franks has taken over the practice in Gramercy Park NYC; she's also a dermatologist. Dr Andrew is probably still at NYUMC. He is the kindest, most approachable and helpful doctor, truly concerned and committed.

There's also Dr Victoria Werth at the University of Pennsylvania, specialising in skin conditions associated with connective tissue diseases.

I am sure there are other specialists. Dr Sontheimer comes to mind though he must be pretty old now but I think he down in Colorado or somewhere.

It's amazing that you're having such difficulty. I'd have thought any well informed lupus doctor knew how useful this anti malarial is either as a replacement for Plaquenil or along with it. It's not surprising that the chloroquine didn't help - it's not much different from Plaquenil.
It does have to be ordered from a compounding pharmacy. I never got it refunded by my insurance because it's not licensed but I know a few persistent people managed.

For the sake of any Brits reading this thread I'm treated at The Lupus Unit at Guy's Hospital London under Professor D. D'Cruz. However i'm about to see if my local hospital prescribes Mepacrine.

Although technically diagnosable with SLE because of two antibodies, I have subacute cutaneous skin problems which have always been the predominant symptom.

I'd wish you every success and it would be good to know how you get on.
Best of Luck!
Clare
 
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