[greenhaggis]

Is there anyone that has Lupus and attends this clinic?

I am still awaiting my appointment (after a very long saga which I wont bore you with!), but would like to know what to expect out of this particular department!

I have many non-lupus pains that have never been treated or even diagnosed with mechanical or non-mechanical causes so would like investigation of those pains prior to being told to take more drugs etc.

Thank you!

Lesley


PS- The physiotherapy department refused to treat me due to the unpredictability of the Lupus (strange though they treat my Mum that has MS).

 

[AmandaB]

Hi Lesley,

I attend Frimley Park & noticed the signs a couple of weeks ago regarding the pain clinic - it's not something I've ever been referred to either. I'd be interested to hear how you get on - it's not something I'm in need of right now but it would be useful for reference at a later date, should things turn (as we know they can!)

I was actually going to ask to be referred for Physio instead to try to overcome a couple of 'issues'......

Hope your appointment is successful.

Amanda

 

[greenhaggis]

((((Amanda,))))

I wish you well with your referal to the physio department - I got one of those very quickly, unfortunately they said they didnt want to treat me and the pain clinic was the best route!

Apparently your GP can refer you to the pan clinic or even better your consultant! The waiting list is very long (6 months I think).

Who do you see at Frimley Park - I see Dr Karim and Immunologist, plus 3 other specialists there too!

Take care!

Lesley

 

[AmandaB]

Hi Lesley,

I see Dr lloyd - he diagnosed me 7 years ago & often refers me to other colleagues - Dr Ho at Fleet is the chest specialist I'm waiting to see again! He's pretty good and usually quick to pick up on things and check various symptoms.

I shall ask about the physio and see how I get on!

Amanda

 

[greenhaggis]

(((Amanda)))

Well I managed to get an appointment really fast (cancellation appt).

Left with Lyrica for pain, said that Amy would not be a suitable option as its not adviseable to take with Glaucoma (or similar symptoms like dry eyes etc). Not yet had a suitable time to start this med and not sure I will ever find one.

For the pains in lower back and groin I will be having x-rays followed immediately by steroid injections (under heavy sedation). This will take place in next 6 weeks. Still find it a bit bizzare that no one had ever found the cause of this pain - but at least someone is now willing to treat as pain is always a level 8 reaching 10 quite a few times in a week!

Lesley