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Summary: organised to see private rheumie at London Bridge Hospital (9 October). In the meantime got a last minute appointment to see visiting rheumie at local hospital on Sept 8. Had blood tests done then, and really honestly thought I would be able to access the results by now, so I could take them with me to London, but no. Seems like our local hospital gets the results, then without taking copies of them sends them direct to rheumie at the big hospital, who takes his time dealing with them because he knows he won't be coming back up here for another six months. Last time GP didn't get a letter for more than 2 months after I had been seen. If I'd known I couldn't get copies of the results, I think I wouldn't have bothered with going to see him and just held out for the london appointment. Now I am going to have to pay nearly £400 in London to do the full lupus screen again. I know I have made the choice of going private, but again I don't feel like I had much of a choice as I have been let down so badly by the NHS.
 

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Hi,

Perhaps the specialist you see privately will be able to request the copies from your NHS Rhuemi! Something to keep in mind when you go on the 9th October.

Good luck at your appointment!

Lesley
 

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I don't know if you are seeing Dr. D'Cruz but if you are he is very understanding and will not order any unnecessary tests. Just tell him the situation.
x Lola
 

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I know how you feel I had my bloods done in a private hospital on September the 4th,I thought I would have had results by now,I phoned my GP and they have a letter from the Rheumatologist to start me on anti inflammetries and are awaiting results maybe im being too impatient!

Good luck with your apppointment,


Bonnie x
 

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I am not in the UK, but I know my GP just rings up the lab and accesses the results so I can usually get results that way.

How frustrating for you and I agree, explain the situation to the doctor you see and ask if there is a way around this.

good luck with it all

raglet
 
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