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Discussion Starter #1
I'm frustrated cause I'm still new at all of this and don't know what to expect next. I'm depressed because my health insurance has paid out all they are going to pay, I can't work to help pay off all the medical bills, and I have no prescription coverage to cover the high dollar prescriptions I'm now on. I feel stuck because I can't drive and I'm used to either being at work (I worked 3 days a week before 4/08) or just going to the grocery store by myself or going shopping. Now I either have to have my husband take me or a friend. I feel so helpless. Besides the SLE, Reynauds, Vasculities, Sleep Apnea, Hyperthryoidism yesterday I found out I'm Vitamin D deficient. Today I start a high dosage of Vitamin D for 3 months. What's next? My husband has been very supportive throughout all of this, but I know he has to be getting tired of me not feeling good. My friends say just give them a call whenever I need something, but I feel like I call all the time and that they are going to get tired of this too eventually and I'm just getting started at this.
I guess I'm having a pitty party and I want some company.
Thanks for letting me vent!
 

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Hi Sonya,

Did your insurance company have a yearly cap or a lifetime cap? How long have you been off work? Have you filed for state benefits or social security disability?

You don't realize how independent driving makes you until you can no longer do it. I couldn't drive for 2 years and in the beginning it drove me nuts. On the weekends I hated to ask my husband except for essentials. Sure saved money being home bound. Hopefully the Lupus will calm down and you can get back to driving soon.

Take care,
Lazylegs
 

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Discussion Starter #4
Thanks Lazylegs for your response. Yes my insurance had a lifetime cap and my hospital bill alone exceeded the cap by 25,000. I worked up till the day they admitted me to the hospital which was April 2nd of 2008. I filed for SS disability but because I hadn't worked enough years in a row I didn't have enough credits to qualify for disability. I did qualify for medically needed medicaid but again I have a spenddown of $15,000 every six months. We (hubby & I) don't guite understand why it is so high because he only teaches part-time and is retired the rest of the time, so we don't have the income to offset this kind of spendown, plus there is no insurance coverage for any of my prescriptions. I am using Together RX and it does help a little on some of the medications. Anyway it has been and is frustrating.

I'm the same way I hate to ask Larry or anybody else to take me places unless it is absolutely necessary. I get to having my pitty parties when I know friends are out doing things and I'm not ask to go along and normally I could have cared less, but it's the depression & not being able to get out on my own that is making me feel this way.

The main reason I can't drive now is that I have no feeling at all in my lower left leg and left foot and partial feeling in my right foot. This has been this way ever since I came home from the hospital.
 

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Hi Sonya,

My neuro taught me to visualize my knee going down to the pedal and the foot will follow. You know you are in the right place if you are increasing or decreasing speed accordingly. It has worked very well for me.

Take care,
Lazylegs
 
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