Hello 
I'm Ally and I'm 44 and at my wits end (almost).
I have yet to be diagnosed with Lupus but I have a feeling that it could be on it's way. For several years I have been having arthritic problems and breathing problems that have been put down to COPD.
Anyway in August 2007 I had minor surgery and when I came round I couldn't feel my right side. Thought I had just laid funny but when I told the nursing staff they put the stockings on me and started giving me a heparin jab twice a day.
From that point onwards I had seriously lousy headaches and visual problems, so went to the optician (like you do) and he wrote to my GP and my GP had me see a neurologist.
Upshot is that as of January 11, 2008 (a date that is permanently stuck in memory) he told me that I had had a stroke......(bottom jaw hit deck at that point and I honestly took no notice whatsoever of what he said after that).
He arranged for blood tests for lupus, heart trace etc. Had them done but wasn't able to go to the next appointment cos I felt ill and he is in Dewsbury and being on a train when feeling giddy, headachey and plain lousy ain't no fun.
Saw him in Dewsbury last Friday, he saw the results...ummm'ed...arrr'ed a bit and sent me off for more lupus blood tests and another heart trace and he is arranging an angiogram too. He asked how I was doing, so I told him that in the year since I saw him last I have made a real talent of falling flat on my face & up/down stairs cos the legs refuse to behave, suffering keyboard dyslexia (I know what I want to type but it doesn't spell right), the headaches are far worse and that apart from feeling like a microwaved corpse...um well pretty rough all round really.
He has taken me off one type of medication since it didn't work and is contacting my GP to sort out a new regime to see what will work. I am set to see him again in a few weeks time.
Well I have been reading up about lupus and hughes syndrome and when looking through the symptoms, I can tick quite a few boxes as being 'that's me'.
Sometimes I hate the internet
Am I jumping to conclusions here or should I be concerned?
I'm Ally and I'm 44 and at my wits end (almost).
I have yet to be diagnosed with Lupus but I have a feeling that it could be on it's way. For several years I have been having arthritic problems and breathing problems that have been put down to COPD.
Anyway in August 2007 I had minor surgery and when I came round I couldn't feel my right side. Thought I had just laid funny but when I told the nursing staff they put the stockings on me and started giving me a heparin jab twice a day.
From that point onwards I had seriously lousy headaches and visual problems, so went to the optician (like you do) and he wrote to my GP and my GP had me see a neurologist.
Upshot is that as of January 11, 2008 (a date that is permanently stuck in memory) he told me that I had had a stroke......(bottom jaw hit deck at that point and I honestly took no notice whatsoever of what he said after that).
He arranged for blood tests for lupus, heart trace etc. Had them done but wasn't able to go to the next appointment cos I felt ill and he is in Dewsbury and being on a train when feeling giddy, headachey and plain lousy ain't no fun.
Saw him in Dewsbury last Friday, he saw the results...ummm'ed...arrr'ed a bit and sent me off for more lupus blood tests and another heart trace and he is arranging an angiogram too. He asked how I was doing, so I told him that in the year since I saw him last I have made a real talent of falling flat on my face & up/down stairs cos the legs refuse to behave, suffering keyboard dyslexia (I know what I want to type but it doesn't spell right), the headaches are far worse and that apart from feeling like a microwaved corpse...um well pretty rough all round really.
He has taken me off one type of medication since it didn't work and is contacting my GP to sort out a new regime to see what will work. I am set to see him again in a few weeks time.
Well I have been reading up about lupus and hughes syndrome and when looking through the symptoms, I can tick quite a few boxes as being 'that's me'.
Sometimes I hate the internet
Am I jumping to conclusions here or should I be concerned?