Hi Jo,
Sorry you're feeling so bad right now; the extra worry about where you results are can't be helping.
I don't really have any advice, other than, if things are bad and you know they are, digging your heels in!
I remember going into my GP in Jan 2007 and telling him that my New Year's resolution was to be his most annoying, pestery, horrible patient until I got answers. I said it very nicely but rather determinedly. I don't think it made much difference to my GP as he's a lovely man who has always taken me seriously, but I think it made a difference to my resolve and made me go back to the rheumy again and say that this was NOT normal.
All I can do, is send plenty of hugs and a bucketfull of that resolve and determination,
:grouphug2:
Katharine