Hi, I was dx with Lupus in 1995, than along came all the other fun and exciting stuff with it , Raynauds, Fibro, RLS, sleep apnea, CSR in my left eye from the meds i was on etc...etc...etc..., now I have gastroparesis, but they dont know if "its from the lupus", so I was wonderind=g if anyone out there suffers with this too??: :rotfl:
gastroparesis
1 - 4 of 4 Posts
Hi Marie,
Welcome to the forum.
Gastroparesis can be related to Lupus but has other origins also such as diabetes. I do not have gastroparesis but others on the site do suffer from it. Hopefully somebody will come along and post some suggestions for you.
Take care,
Lazylegs
Welcome to the forum.
Gastroparesis can be related to Lupus but has other origins also such as diabetes. I do not have gastroparesis but others on the site do suffer from it. Hopefully somebody will come along and post some suggestions for you.
Take care,
Lazylegs
Hi Marie,
I have mild gastroparesis which definitely appeared with lupus. The worse I am disease wise, the worse it is.
The main problems I get from it are a bloated feeling, mild constipation and severe heartburn.
As I say, one important factor for me is disease control but also I have been able to do a lot with diet. I discovered that bread is my number one worst enemy. It stays in the stomach a long time and is a sure heartburn provoker for me. I now very rarely eat bread but, as my heartburn is under control, can do so once in a while if we are out or there's nothing else around, or I simply feel like it.
Another thing that made a BIG difference, especially to feeling bloated and the constipation is that I stopped drinking milk. I mean, I never did drink it but had it in cereals and tea. I decided to switch to soya milk and see if there would be any difference. There was and now, if I drink ordinary milk again I really regret it. I get the calcium and vitamin enriched soya milk. It is lightly sweetened which makes it easier to drink. It makes fabulously creamy, delicious porridge which is great in a morning to keep any tummy problems away with that handful of meds I take. In tea I use the unsweetened variety and it's OK though some may prefer to get used to tea without milk
I also have the soya desserts which are great and provide something nice from time to time without making me feel ill and without doing cholesterol damage.
Other than that, I make sure I drink my two glasses of fresh orange juice a day. I try and eat other fruit but am very bad about it in winter. I never was a great fruit eater. I eat plenty of veggies... just all "good" things we know we should do.
I have been able to greatly improve things this way. Another thing for people with more severe gastroparesis is to eat very small quantities more often.
When I did go through bad patches with it I found that the med "domperidone" (I think unavailable in the US) helped quite a bit as it helps empty the stomach.
Unfortunately I believe that there is little which is "sure" medically that can be done to help and a lot comes down to trial and error and changing diet.
Hope that helps a bit,
Katharine
I have mild gastroparesis which definitely appeared with lupus. The worse I am disease wise, the worse it is.
The main problems I get from it are a bloated feeling, mild constipation and severe heartburn.
As I say, one important factor for me is disease control but also I have been able to do a lot with diet. I discovered that bread is my number one worst enemy. It stays in the stomach a long time and is a sure heartburn provoker for me. I now very rarely eat bread but, as my heartburn is under control, can do so once in a while if we are out or there's nothing else around, or I simply feel like it.
Another thing that made a BIG difference, especially to feeling bloated and the constipation is that I stopped drinking milk. I mean, I never did drink it but had it in cereals and tea. I decided to switch to soya milk and see if there would be any difference. There was and now, if I drink ordinary milk again I really regret it. I get the calcium and vitamin enriched soya milk. It is lightly sweetened which makes it easier to drink. It makes fabulously creamy, delicious porridge which is great in a morning to keep any tummy problems away with that handful of meds I take. In tea I use the unsweetened variety and it's OK though some may prefer to get used to tea without milk
I also have the soya desserts which are great and provide something nice from time to time without making me feel ill and without doing cholesterol damage.
Other than that, I make sure I drink my two glasses of fresh orange juice a day. I try and eat other fruit but am very bad about it in winter. I never was a great fruit eater. I eat plenty of veggies... just all "good" things we know we should do.
I have been able to greatly improve things this way. Another thing for people with more severe gastroparesis is to eat very small quantities more often.
When I did go through bad patches with it I found that the med "domperidone" (I think unavailable in the US) helped quite a bit as it helps empty the stomach.
Unfortunately I believe that there is little which is "sure" medically that can be done to help and a lot comes down to trial and error and changing diet.
Hope that helps a bit,
Katharine
Joined
·
156 Posts
tummy problems suck
hi marie,
i came across your post today as i'v been away awhile thought i would throw my two cents in.
i was diagnosed with gastroparesis six years ago. i ended up in the hospital do to vomitting for three weeks straight, i was very ill. it took them nearly a month to find out what was wrong with me. i also had an ulcer. they haven't said that is directly related to lupus but they think so because slight neurophties. the nerves don't tell my stomach to move. i don't get constinpated often i just barf. i was put on erythromyosin(sp?) some go on reglan. i took it for many years. i've been off it awhile now but i still can't eat much, small little meals. i drink alot of boost but i still get nauseous often. not to mention my weight. anyway just thought i'd let you know that you aren't alone.
take care and feel better
hi marie,
i came across your post today as i'v been away awhile thought i would throw my two cents in.
i was diagnosed with gastroparesis six years ago. i ended up in the hospital do to vomitting for three weeks straight, i was very ill. it took them nearly a month to find out what was wrong with me. i also had an ulcer. they haven't said that is directly related to lupus but they think so because slight neurophties. the nerves don't tell my stomach to move. i don't get constinpated often i just barf. i was put on erythromyosin(sp?) some go on reglan. i took it for many years. i've been off it awhile now but i still can't eat much, small little meals. i drink alot of boost but i still get nauseous often. not to mention my weight. anyway just thought i'd let you know that you aren't alone.
take care and feel better
1 - 4 of 4 Posts
