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Hi, I was dx with Lupus in 1995, than along came all the other fun and exciting stuff with it , Raynauds, Fibro, RLS, sleep apnea, CSR in my left eye from the meds i was on etc...etc...etc..., now I have gastroparesis, but they dont know if "its from the lupus", so I was wonderind=g if anyone out there suffers with this too??: :rotfl:
 

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Hi Marie,

Welcome to the forum.

Gastroparesis can be related to Lupus but has other origins also such as diabetes. I do not have gastroparesis but others on the site do suffer from it. Hopefully somebody will come along and post some suggestions for you.

Take care,
Lazylegs
 

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Hi Marie,

I have mild gastroparesis which definitely appeared with lupus. The worse I am disease wise, the worse it is.

The main problems I get from it are a bloated feeling, mild constipation and severe heartburn.

As I say, one important factor for me is disease control but also I have been able to do a lot with diet. I discovered that bread is my number one worst enemy. It stays in the stomach a long time and is a sure heartburn provoker for me. I now very rarely eat bread but, as my heartburn is under control, can do so once in a while if we are out or there's nothing else around, or I simply feel like it.

Another thing that made a BIG difference, especially to feeling bloated and the constipation is that I stopped drinking milk. I mean, I never did drink it but had it in cereals and tea. I decided to switch to soya milk and see if there would be any difference. There was and now, if I drink ordinary milk again I really regret it. I get the calcium and vitamin enriched soya milk. It is lightly sweetened which makes it easier to drink. It makes fabulously creamy, delicious porridge which is great in a morning to keep any tummy problems away with that handful of meds I take. In tea I use the unsweetened variety and it's OK though some may prefer to get used to tea without milk :)
I also have the soya desserts which are great and provide something nice from time to time without making me feel ill and without doing cholesterol damage.

Other than that, I make sure I drink my two glasses of fresh orange juice a day. I try and eat other fruit but am very bad about it in winter. I never was a great fruit eater. I eat plenty of veggies... just all "good" things we know we should do.

I have been able to greatly improve things this way. Another thing for people with more severe gastroparesis is to eat very small quantities more often.

When I did go through bad patches with it I found that the med "domperidone" (I think unavailable in the US) helped quite a bit as it helps empty the stomach.
Unfortunately I believe that there is little which is "sure" medically that can be done to help and a lot comes down to trial and error and changing diet.

Hope that helps a bit,
Katharine
 

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tummy problems suck

hi marie,

i came across your post today as i'v been away awhile thought i would throw my two cents in.
i was diagnosed with gastroparesis six years ago. i ended up in the hospital do to vomitting for three weeks straight, i was very ill. it took them nearly a month to find out what was wrong with me. i also had an ulcer. they haven't said that is directly related to lupus but they think so because slight neurophties. the nerves don't tell my stomach to move. i don't get constinpated often i just barf. i was put on erythromyosin(sp?) some go on reglan. i took it for many years. i've been off it awhile now but i still can't eat much, small little meals. i drink alot of boost but i still get nauseous often. not to mention my weight. anyway just thought i'd let you know that you aren't alone.

take care and feel better
 
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