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Discussion Starter · #1 ·
Have just got back from a fairly good appointment with GP. I have just received an appointment for a second opinion neuro consultation (in three months), but I was concerned that if this came out not showing anything I'd be back to square one, especially as I am currently having more symptoms that are lupus-like than neurological at the moment. I told GP I really wanted to get to the bottom of the lupus thing once and for all, and I was prepared to go to the London Lupus Hospital privately, but it would be good if I could have some of the blood tests done first to cut the expense a bit. He suggested referring me back to the local Rheumie consultant first, and I have agreed. The next clinic at our local hospital isn't until September, but GP is going to write to rheumie and ask what tests he wants first, so at least something can happen fairly soon. Last time I saw this rheumie he wasn't convinced it wasn't lupus, and did consider starting me on hydroxychloroquine (which he didn't actually do in the end). However I didn't have anything much active happening at the time and the only positive blood was ANA of 1:40 (speckled pattern), which isn't enough to really show anything. I think I might also have had complement in the low end of normal range too.This time I am definitely more sun sensitive with absolute fatigue after being out in it, and much more in the way of achy joints, and a flare of the malar rash. I also have fairly good photos now of what I am sure is livedo reticularis, and my urine has been showing traces of protein for a while. At least now I have the GP onside again it feels much more positive.
 
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