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Hi, I would like to hear from someone taking cellcept for lupus. I have been taking it now for 4 years with great results. I haven't had any major flares since starting it. What I am looking for is people in Canada taking it and if their insurance is paying for it. Mine won't pay because I did not have a transplant yet so they say it is ineligible. Anyone else with this problem???
 

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I hope you get some helpful replies Roxanne - I have copied your post to this section too. As the new drugs come out and start being used for lupus this sort of situation becomes more common - not being paid for unless the drug is licensed and approved for use with lupus.
There is certainly plenty of evidence that it does help many and means they don't have to use Cytoxan which has more serious side effects and problems.

Lots of Luck
Clare
 

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Hi Roxanne,

My daughter just finished her last cyclophosamide treatment she has had seven since August. Her Rheumie has said that they will probably start her on Cellcept and Imuran in March. They are trying to wean her down from the high doses of prednisone. They did ask us if we had a good drug plan as cellcept is expensive.

I can't answer your question right now, but in March I will know more. Her next appt. is March 5th.

A question to you, did you have many side affects from this drug? and what is the cost without a plan?

I thought you could apply for Trillium through your specialists if your drugs were not covered. It involves your
specialists filling out forms.

Good Luck,
Sharon
 
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