Getting kicked when I am down

Hi there and ((((((((hugs)))))))),

You poor thing, that pain sounds dreadful and quite unbearable. I wouldn't care too much about who I am "supposed" to call - I'd call them all until I got results. Maybe getting a referral to a pain management doctor might be worthwhile, just shooting in the dark here...

It's never easy getting up in the night, even at the best of times but with that pain must be even harder. You must also be totally exhausted with trying to cope with it and too little sleep. You need to try and do something about this.

As for the house. If you can afford to get in a little extra outside help then I would strongly recommend doing so. That's what we did when I honestly couldn't do a thing around the house. Even though things are a bit better now, we still have that help and it means that the energy I have can be chanelled into a little work rather than cleaning. If you can't afford to do that, and I understand that many people can't, then you just have to learn to "ignore" it. You have to try and condition yourelf not to feel guilty. You are not responsible for having this disease and its consequences. I'm sure that hubby feels just as bad having to watch hopelessly without being able to relieve your pain.

I'm truly sorry that I don't have any more "helpful" suggestions,
:hug:

Katharine

Dear Sharon

Im very sorry to hear you have had such a rough time and are in so much pain. :sad: How hard it must be for you trying to look after the little one :sad:

Katharines idea of getting in some help sounds great if you can afford it. Its amazing what someone can do in the space of a few hours per week to keep things ticking over. I have someone who comes in for three hours every fortnight and its enough to keep the house going plus I get the ironing done. Its so worth it that I would sacrifice other things to keep it going.

Basically she washes the floors, tidies up the kitchen area (so it looks like a new house), tidies up here and there, makes the beds (and changes the duvet covers which I cant do myself) and does the ironing. The rest I can manage but this small bit of help means the world to me.

I hope one of your doctors can help you and that the pain recedes soon. You might need to go up on the steroids again. I recall getting a severe bout of inflammation in the chest and screaming in pain trying to lift myself off the bed. Its horrible :sad:

Do you have anyone to help with the baby? I cant imagine trying to lift and mind a baby while I was in so much pain.

Please let us know how you are doing if you get the chance
Much love
Joan:rose:

Dear Sharon,

Bless your heart. Taking care of a baby and having that chest pain...no wonder you are so down. I've had that chest pain that awoke me from sleep and I couldn't take a deep breath or hardly move without sharp pain. My doctor had me on 15mg prednisone daily for a week plus pain meds for those times. I'm not sure if you are breastfeeding, so those options might be limited. If not, get whatever drugs you can to help with the pain so that you can function.

And...forget the housecleaning...get help or try to put it aside until you feel better.

How is your husband about this? Is he understanding? It might help to say that you realize things could be better, but that you are doing all you can right now and once things get better, things will improve around the house. If he asks what he can do to help, give him a few jobs! It might help him feel better as it's possible he feels terrible that he cannot do anything about your pain.

Above all, get help from your doctor to stop the pain so you can function. Once you feel better, all these things will feel less overwhelming.

Hang in there...
Monica

Hi Sharon,

I want to offer my support for you, during this most difficult time.

You are a strong person, but have limits. Please try..not to worry about the things that don't matter, in the end.

You and your family's immediate needs, are all that matter.

I hope you heal fast (((Sharon))). I hope your pain eases soon.

I agree..that a pain specialist may be in order, at this point.

Bless you, Sharon.

Love,
Sandy

Hi Sharon,
I really empathise you poor thing. I too a lot of unflamation around my chest area and it s awful especially with a family to take care of.

Just try to focus and the survival stuff and try to rest if and when you can. When the baby is having a nap maybe try putting a movie on for your other son and putting your feet u[ for a bit. Easier said than done I know!!

But don't feel guilty.

I definately think you should ask for some pain relief if you don't have any already it will definately help take the edge off atleast.

I hope this awful episode starts to get better for you soon and n the meantime don't give your self a tough time for not doing everything.

Take Care

Cassie