[elisabethm]

hi all does anyone know anything about Gluten and lupus or Gluten and anemia waiting on results of more blood test results got the flu at the moment feel like a washed out dish cloth

 

[Jackster]

Hi, sorry about the flu, that's really rough to deal with when you are well let alone when you have other things to cope with too. I'm not sure about the gluten but I was diagnosed in November with lupus and I have low iron counts at every blood test and should really take iron tablets but they stop me going to the toliet (sorry too much information!). Hope someone else can answer your query and I hope you get rid of the flu soon, take care.

 

[Christine UK]

hi there..

I was anemic for ages then my brill rheumy said there may be a connection..
In November i had a gut biopsy and it was confirmed i ahve coelic disease might be worth having a word...good luck x x

 

[karen.w.]

hi elisabeth

sorry to hear you have flu :sad: I have read that too much gluten is not good for us but I'm not sure if it has been proven?

personally I try to limit my intake as I definitely feel better without it..only problem is I don't have much willpower can't seem to eliminate it altogether!

good luck with your results & I hope you feel better soon
:there: karen x

 

[cemc]

I have coeliac disease (gluten intolerance) and a host of other, as yet undiagnosed, problems including a malar rash and enough other stuff to have had Lupus considered as a diagnosis. Coeliac disease is another autoimmune disorder and it occurs in people who have the same genetic background as rheumatoid arthritis, lupus, some thyroid disorders, etc. It seems to mean that if you have a family history of any of these things, then you have the genetic susceptibility that may mean you have more chance to get any one of the others on the list. It does also seem that rather more people than just by chance end up with more than one of these autoimmune disorders.

Having gone for probably 20 years myself with what should have been obvious symptoms of coeliac disease and the malabsorption problems that go with untreated coeliac disease (including anaemia, folate and B12 deficiencies with no obvious cause) I'd now strongly suggest that you do everything you can to get yourself screened for it. It is a very common problem (1 in 100 people have coeliac disease) but one that is not diagnosed anywhere near often enough (probably less than 1 in 2000 people actually get diagnosed), and GPs and specialists alike seem to have very little understanding. Check out the coeliacuk dot org dot uk website for a bit more info, and then see if you can convince your GP to do the blood screening tests as a first step. In the meantime, DON'T change your diet - you actually have to be eating a full gluten containing diet in order for any of the tests to be positive. This is one case where antibodies do return to normal when treated by the gluten free diet.

 

[Christine UK]

cemc...you are right please dont stop any gluten things unless you are sure you have it.
Even when they thought i had it i had to continue a normal diet that involved it as they said that otherwise the biopsy results wouldnt be right.