Good Afternoon All
Had Rheumy appointment today and finally I feel I may be getting somewhere? Yes at first I got all the jargon about Fibro but then I'm pleased to say I stood up for myself and put my best foot forward:lol:
I fired questions at the rheumy and explained that I don't feel things can just be put down to Fibro or urticaria. I asked about my blood tests being slightly out on a few which she seemed surprised that I knew... I also asked her to check if skin biopsy result was back and low and behold it was.
It clearly mentioned about inflammation and lots of other things I couldn't quite see so I politely asked for a copy and guess what... She didn't have a printer to hand so once again I said that I was sure somebody in department could print a copy for me:lol:
Off she wondered and 15 minutes later came back with the top Rheumy as I expected she would! He explained that the biopsy showed that I had urticarial vasculitis and that he is going to speak to Dermy and make an appointment to see me with a view to giving me 'hydroxychloroquine'. Not fully up on condition or meds so will be going off soon to check this great site for more info.
I did say to top Rheumy that I have now been diagnosed with one of the things he first suspected I had 12 months ago but because no bloods showed I had then it got thrown out of window. I also said that if this has come back then maybe relying on bloods to show for a CTD could be a long wait. He finally acknowledge that bloods don't always show and that they are going to once again keep a close eye on me...we shall see:hehe:
Wow! What a great appointment. I truly feel had I not stood up for myself and put my point across I would have been fobbed off but now I think he spoke to me much differently and thought more of me.:wink2:
I hope that this is the start of moving forward and would like to thank you all for your support and advice xxx
Without you guys and my family I may well have said forget it and try to carry on in this awful mess.
Thankyouuuuuuuuuuuuuu
Mrs M x
Had Rheumy appointment today and finally I feel I may be getting somewhere? Yes at first I got all the jargon about Fibro but then I'm pleased to say I stood up for myself and put my best foot forward:lol:
I fired questions at the rheumy and explained that I don't feel things can just be put down to Fibro or urticaria. I asked about my blood tests being slightly out on a few which she seemed surprised that I knew... I also asked her to check if skin biopsy result was back and low and behold it was.
It clearly mentioned about inflammation and lots of other things I couldn't quite see so I politely asked for a copy and guess what... She didn't have a printer to hand so once again I said that I was sure somebody in department could print a copy for me:lol:
Off she wondered and 15 minutes later came back with the top Rheumy as I expected she would! He explained that the biopsy showed that I had urticarial vasculitis and that he is going to speak to Dermy and make an appointment to see me with a view to giving me 'hydroxychloroquine'. Not fully up on condition or meds so will be going off soon to check this great site for more info.
I did say to top Rheumy that I have now been diagnosed with one of the things he first suspected I had 12 months ago but because no bloods showed I had then it got thrown out of window. I also said that if this has come back then maybe relying on bloods to show for a CTD could be a long wait. He finally acknowledge that bloods don't always show and that they are going to once again keep a close eye on me...we shall see:hehe:
Wow! What a great appointment. I truly feel had I not stood up for myself and put my point across I would have been fobbed off but now I think he spoke to me much differently and thought more of me.:wink2:
I hope that this is the start of moving forward and would like to thank you all for your support and advice xxx
Without you guys and my family I may well have said forget it and try to carry on in this awful mess.
Thankyouuuuuuuuuuuuuu
Mrs M x