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greeting all

well...i seem to be whigging rite about now. i have an appointment with my rheumies covering doctor tomorrow. gosh i wish he was back from turkey. she had me get bloodwork done. she ran another lupus panel, not any of the other things that needed to be run. fortunately i had the prescription from the previous doctor so i got all the bloodwork that has been ordered over the past six months. i'm whigging cause i don't have alot of confidence is this woman. not to metion i now have to have my pain meds written thru another doctor who is pain doc. i'm afraid if blood doesn't come back all positive she will take my diagnosis away. my bloodwork has always alittle wonky. when i had thought i had hep-c the doctor said no cause my bloodwork didn't show that my liver enzymes elevated...well after alot of arguing i finally got him to run the hep-c test and sure enough i was positive for hep-c. my bloodwork for lupus has always been inconsistent. what if she decideds i don't have lupus. its been along road, and many new symptoms have popped up over the years, most currently the neuro issues and the treatment plan i've been on is helping. i'm afraid i'm going to go thru the darkness all over again. we all know that there are ill equipt to understand lupus. i wish i could go to turkey and find my doctor and pull him back here to take care of me. he and my gastroentrologist saved my life six years ago. i haven't had alot of faith in doctors (except the one i use to work for) so when i found dr.k it was like a god send to me. what am i going to do if this new woman is a dolt and takes me off my treatment plan. and lets not even go to if they take me off my pain meds. i've told them that if they want/need to do that they have to put me in a chemical induced coma for withdrawl. oh gosh, my stomach is in knots and gurgerling. the thought of the pain, swelling, debilitateing fatigue, the all over feeling like death. i don't know what to do...i know i'm babbling now but my head is racing around in circles. i'm sooo anxious. my little feetsies and paws are like ice and hurt. at least my headache has gone away.
well i better stop whinning now before you guys kick me off the board.

take care guys and i hope you are all doing well

hugs and kisses
 

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Spellbinder, I wish you a really positive successful rheumy appt tomorrow. I understand your anxiety about doctors, a bad experience can really scar us. What's your favourite thing to relax? I read a book as it concentrates my mind on the book and I forget about my worries. Have a relaxing evening and I hope that tomorrow goes well for you.

Take care

Deb
 

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Hi Spelllbinder,
I know how hard it is to go see a new doc. Those questions of "what if" pop in our heads way to much.
I looked back at your posts and found what you said about the new doc.

i know that this new lady doc is probably going to work out fine for right now, she's just not a nice to look at like my guy..:cloud9: i also have to see the pain doc as the other rheumy is one of those isn't comfortable writing pain med scripts, so while i'm sitting here getting my infusion i get to meet her to get my drugs. i'm still alittle uneasy about all of this, but then again i guess we all go thru this uncertainess


I will keep everything crossed for your appointment tomorrow.:fingers: Please try to relax some.
Love,
Lyn
 

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Spellbinder:

Crodd the bridge when you get to it, not before....all this worrying is not going to help you!

I know its hard, but please try to take a few calming breaths and know that there are a bunch of us with our fingers, toes and eyes crosssed for you.

GOOD LUCK!!!

Love stephanie
 

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I totally understand where you are coming from. My latest neuro is leaving and I am beginning once again with a new one. The new doctor came highly recommended. He will probably be great, I just wasn't ready to leave my comfort zone I had with my past doctor.

Since this doctor is in the same practice I doubt any changes will be made to your treatment, especially since you have done so well. If the doctor does recommend a change, question her on it and make her give you a convincing reason as to why.

Good luck.

Take care,
Lazylegs
 

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Spellbinder,


I totally understand what you are feeling right now. My doctor was depployed to Iran to fight in this ongoing war. Anyway, it turned out the doctor that was covering for him turned out to be a wonderful man. He found that I was losing strength in my right hand and was able to get me to the correct specialist to take care of the problem. Look, I know that there are plenty of losers out there but you have to believe that this one is not going to be a dud. Do whatever you have to do to convince yourself it will be okay. Become superstitious. Toss salt over your left shoulder and make a wish. Pick up a penny and make a wish. Don't walk under a ladder, don't let a black cat cross your path (haha)............. Seriously, have a nice cup of tea or a beer if that helps and take a deep breath, everything will work out.

I will have my fingers crossed
Nancy
 
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