I decided to go to the Mayo Clinic in Rochester to get some more opinions. Went there yesterday. The rheumatologist there said that my lupus is still pretty active with high sed rate, low complements and anti dna of 1:320. Also white count is low. I have been living with the decision of taking cellcept and getting sick from it or not taking it and letting lupus take over. He said that was not an acceptable way to live and suggested I start taking methotrexate to see if I handle that better. Every time I suggested it to my normal rheumy he said no. Also am involved in a new research thing here in the US. Not sure I quite understand it, but hey, if it will help possibly in the future I'm all for it!! So, wish me luck on the new meds. I'm finally feeling a little bit of hope!!