[PamW4]

Good Evening. I'm at work, it's my late night and was perusing the internet and came across this site. I am so grateful that I found it. It explains the pain that I have been feeling in my back and chest. It's so nice to know that there are others out there going through similiar problems. As I read the posts, I realized that a true bond has been formed with all of the posters. Everyone cares about everyone. I am so happy to be a part of this "group". I was diagnosed with Lupus 4 years ago. I have had epilepsy since I was 12. My RA said that she believes I have had lupus my entire life and the epilepsy was a cause of the Lupus. When I was diagnosed, it all made sense- I had been feeling pretty well until a few weeks ago, but I know that this too, shall pass. I look forward to talking to you all!!!!!!

Talk to you soon!
Pam

 

[LolaLola]

Hello Pam. Welcome here. I am in the UK but not sleeping well tonight.
You are right the people here are great, very supportive.
Hope your current bad spell passes quickly.
x Lola

 

[keebler]

Hi Pam

It is nice to meet you. Welcome to the Lupus Site.

You are right the lupus site is full of understanding and caring members. It is also a good source of information on lupus.

Sorry you are feeling bad at the moment. What is going on?

Take care,
Lyn

 

[KarolH]

Hey there Pam and nice to meet you.

I am your neighbor, not close enough to do coffee chit chats but close enough.:lol::lol::lol:

Sorry about your dx of Lupus and this latest flare but your right, with time it will pass.

You will just love this board. It has become, in a sense, my home away from home.

Funny how you can feel so close to people you have never met.:wink2::wink2:

I hope to get to know you better. If you do not mind me asking how does your Lupus effect you?

Join us in the chat room sometime. The link is at the top in the purple bar. Just click on it and your in. See ya there sometime.:wink2:

 

[PamW4]

Good Morning!!

It's 9:16am here. I love the fact that this board has people from everywhere. How wonderful is that??

Lyn, right now I am going through bouts (is that spelled right?) of sharp pains in my upper back that seems to move through to my chest making it uncomfortable to breath. That is actually how I found this site- I googled pain in back and chest and was directed to the board. I read the symptoms that other posters had and they mirrored mine. I went home last night and took an Aleve and then took some Pred this morning. I go to the doc in a few weeks and will talk to him about this- I am feeling a little better today. It happened a few weeks ago as well. My doctor took me off the Plaqunel (sp?) because my white blood cell count dropped so much, she even sent me to a doctor (I cannot remember the specialist- wish I could). They gave me a shot- the kind they give patients going through chemo to bring up the count again. That hurt like a son of a gun for a few weeks. My count went up, but came back down again, though not as low as before. They had talked about doing a bone marrow biopsy, but I spoke with my Rhumy and he said that he thinks this is all related to the Lupus- so I did not have the biopsy done. In all honesty, I did not want to do that.

Lola Lola- sorry to hear you aren't sleeping well. Are you feeling ok?

Karol- Good Morning. We really aren't that far away from each other. You're right though, a meeting at Starbucks is probably out of the question- for now, anyway. :lol: My lupus affects me in my joints. It comes and goes. I don't have any problems with the sun (thank goodness), but there were times when the pain was so bad- I've been pretty lucky really. I know that it could be so much worse.

Thank you all for the kind welcome. I already feel like I've known you for a while. It's amazing how sharing the same illness can bring strangers close (and I have been told that I can be pretty strange- haha)

I look forward to talking to you all and sharing stories. Thanks for making me feel so welcome.

Pam

 

[KarolH]

Hey Pam,

It is funny how you get close to people on a forum.

I always say some of my best friends are people I have never met.

I love this place and the help, support and knowledge these kind people have provided to me has touched my heart in many ways.

Your just going to love it here.

See you in the chat room sometime.

By the way, I used to know a girl in Severna Park Maryland many years ago. It is so pretty in Maryland..................Jersey is the arm pit of the world.:lol::lol::lol:

 

[PamW4]

Hi Karol-

You're right- I have actually met some people that I met on a board- cruisecritic- there are a few that I am still in touch with, and it's been 5 years.

I love the fact that we can all understand what each other is going through. As much as my hubby attempts to, I don't believe he fully "gets" it sometimes, and that's ok, I don't expect him to understand fully what I go through at times.

Severna Park is right by me, I live in Pasadena. I'm a Maryland girl. Say what you want about Jersey, but you have the one thing that I absolutely love.... Jon Bon Jovi!!!!

Talk to you soon!

Pam

 

[Lily]

John Bon Jovi :yes: :lol:

Welcome Pam :welcome:

love
Lily

 

[KarolH]

I suppose if he were in my back yard then it would be ok to live here.:wink2:

 

[PamW4]

I just love John Bon Jovi- truly my favorite.

Thanks for the welcome, Lily. I love this board and it's only been a few days. Everyone is just so kind. I already feel like I've known you all for ages. :wink2:

Pam

 

[Mary Ann 47]

Pam,
Jon Bon Jovi and Richie Sambora too!!!!! Love them...
Mary Ann