[fiona88]

HI just a follow up on whats been going on!
I had the rhumy on fri and he was nice. I took your advice and the doctors and went prepered with a list of symptoms and pics of my rash. The doc says the rash is an erythmatous rash ? Does this mean it is not lupus ? The rash has been all over my body but mainly on face ,chest, arms, knees and feet.
He said he wasnt sure what was wrong with me and took some more bloods! He also tested all my reflexes and movement and said I should attened physio which I have been to before and has not helped but I will try again. He said i was very stiff but I explained the stiffness is usually worse in the morning and has only been a problem since my flare up. I have not to go back till may but he did say my symptoms may be all non related or they could fit together but even if I do get a diagnosis they may not treat me! So I am just gonna take it as it comes and see what happens. I have been alot better latley but still getting pain today it was in my lower spine and my legs but I just keep taking painkillers. Thankfully I am back at work after 10 weeks to take my mind off the pain.
Thanks for reading my message
fiona

 

[fiona88]

Hi lily thanks for your reply!
The doc took a urine sample for analysis when I was at my appointment so at least he is following that up. I dont know why he said I may not get treat ment even after diagnosis? Maybe he thinks its not lupus but I will wait and see what he says. I am hoping to go back to my gp in a few weeks so hopefully he passes on the results of the bloods to her and I can talk to her about it.
Thanks again
Fiona