Following on from the thread:
Requested Blood Test Results for the last 11yrs
Hi there
Hope everyone had a great Christmas, etc.
I had my haematologist appointment last week!
Well, basically~she went through my symptoms with me then explained that the Rheumy would have looked at all the physical effects and that she was just generally interested in my bloods! OK that was fine, she explained that the positive Lupus Anticoagulants found in my bloods were basically for the purpose of the hospital (???) ie:it didn't mean I have Lupus but meant that along with me being slightly overweight & also a smoker then I would be a high risk factor for blood clots if I had an operation or indeed long haul flights!
So I pointed out~ok so why is my APPT flagging HI it is now 1.6~which obviously means it takes longer for my blood to clot!!!~hence she changed the subject!
She questioned about previous operations, I explained that after both pregnancies I haemorrhaged, she asked if I bled more than the norm after my tonsillectomy? I said seen as I was only 8years old at the time I wouldn't know!
She then gave me a physical where she looked down my throat, felt my neck and then pressed my tummy!~she pressed at one point which was sore & she noted my discomfort! & questioned as to how long had I been sore there (by this time, I had lost confidence in her!) & sarcastically said that it only started to hurt when she pressed it! which was true, I had not noticed it prior to the examination! it wasn't sore after she released the pressure! she then stated that perhaps it was due to my IBS! (even I worked that one out!)
I then explained to her that obviously I was concerned what with the family history ie:my sister with MS. First she said that she wasn't interested in the family history as that would be down to the Rheumy to investigate! (??) then she questioned why I thought there would be an added problem with my sister having MS, I said as Lupus & MS were related conditions which she point blankly told me that they weren't!! to which I then argued with her that they were also along with Intercranial Hypertension which my cousin suffers from!
At this point I felt like walking out! I just felt we were going round in circles! she asked why I was concerned about my results? I asked her wouldn't she want to get to the bottom of it if they were hers??
I said that I just wanted someone to say "no I didn't have lupus", "yes you do have it" or "well we don't know!"
I asked these three questions:
Why these results are showing up in my bloods?
Whether any of my illnesses are linked, or is it just pure coincidental?
And has Antiphospholipid Syndrome been riled out?
Which she was honest enough to say she couldn't answer any of them!
She asked which of my symptoms did I want to investigate, I said all of them! but mainly my migraines, she asked how long I'd felt tired which I couldn't be specific with many of my symptoms about their time scales as basically they have gradually crept up on me over the years!
I have an appointment in 6 weeks to view the results of the bloods taken & discuss where to go from there, she then said she could understand why I wanted to get to the bottom of it all! (??)
Even my hubby said that he felt like I knew more then she did!
so please can I ask you guys what sort of questions should I ask for the next time?
Many thanks
Wolfie
Requested Blood Test Results for the last 11yrs
Hi there
Hope everyone had a great Christmas, etc.
I had my haematologist appointment last week!
Well, basically~she went through my symptoms with me then explained that the Rheumy would have looked at all the physical effects and that she was just generally interested in my bloods! OK that was fine, she explained that the positive Lupus Anticoagulants found in my bloods were basically for the purpose of the hospital (???) ie:it didn't mean I have Lupus but meant that along with me being slightly overweight & also a smoker then I would be a high risk factor for blood clots if I had an operation or indeed long haul flights!
So I pointed out~ok so why is my APPT flagging HI it is now 1.6~which obviously means it takes longer for my blood to clot!!!~hence she changed the subject!
She questioned about previous operations, I explained that after both pregnancies I haemorrhaged, she asked if I bled more than the norm after my tonsillectomy? I said seen as I was only 8years old at the time I wouldn't know!
She then gave me a physical where she looked down my throat, felt my neck and then pressed my tummy!~she pressed at one point which was sore & she noted my discomfort! & questioned as to how long had I been sore there (by this time, I had lost confidence in her!) & sarcastically said that it only started to hurt when she pressed it! which was true, I had not noticed it prior to the examination! it wasn't sore after she released the pressure! she then stated that perhaps it was due to my IBS! (even I worked that one out!)
I then explained to her that obviously I was concerned what with the family history ie:my sister with MS. First she said that she wasn't interested in the family history as that would be down to the Rheumy to investigate! (??) then she questioned why I thought there would be an added problem with my sister having MS, I said as Lupus & MS were related conditions which she point blankly told me that they weren't!! to which I then argued with her that they were also along with Intercranial Hypertension which my cousin suffers from!
At this point I felt like walking out! I just felt we were going round in circles! she asked why I was concerned about my results? I asked her wouldn't she want to get to the bottom of it if they were hers??
I said that I just wanted someone to say "no I didn't have lupus", "yes you do have it" or "well we don't know!"
I asked these three questions:
Why these results are showing up in my bloods?
Whether any of my illnesses are linked, or is it just pure coincidental?
And has Antiphospholipid Syndrome been riled out?
Which she was honest enough to say she couldn't answer any of them!
She asked which of my symptoms did I want to investigate, I said all of them! but mainly my migraines, she asked how long I'd felt tired which I couldn't be specific with many of my symptoms about their time scales as basically they have gradually crept up on me over the years!
I have an appointment in 6 weeks to view the results of the bloods taken & discuss where to go from there, she then said she could understand why I wanted to get to the bottom of it all! (??)
Even my hubby said that he felt like I knew more then she did!
so please can I ask you guys what sort of questions should I ask for the next time?
Many thanks
Wolfie