Getting on adequate treatment to control your disease is the best thing to treat hairloss. I am having a lot of hair loss at the moment myself, it's one of the clues I have to a more severe flare up of my disease. I try to shower/wash hair infrequently too (twice a week) but then it's almost harder when I see that volume of hair coming out. Even wringing my hair I pulled out a wad of at least 100 hairs with today's shower! Then combing it out I lost another 100 or so. Then all the hair on my pillow, etc. It can be so frustrating.
In the past, when it's gotten really bad, I've found a shorter hair style tends to cover up the hair loss better than trying to maintain a shoulder length or longer hair style.
It is usually lupus that is the culprit (or autoimmune disease) but you may want to ask your doctor about it to be sure if there isn't something else causing it. If there are lesions on your scalp, then there may be additional medications that would help beyond the traditional lupus/MCTD meds. (if I remember right - you have MCTD/RA/SLE). Medications can cause hair loss too of course.
Hope the hair stops falling out in such volume for both of us soon!
In the past, when it's gotten really bad, I've found a shorter hair style tends to cover up the hair loss better than trying to maintain a shoulder length or longer hair style.
It is usually lupus that is the culprit (or autoimmune disease) but you may want to ask your doctor about it to be sure if there isn't something else causing it. If there are lesions on your scalp, then there may be additional medications that would help beyond the traditional lupus/MCTD meds. (if I remember right - you have MCTD/RA/SLE). Medications can cause hair loss too of course.
Hope the hair stops falling out in such volume for both of us soon!