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Has my life really got to change?

333 Views 8 Replies 8 Participants Last post by  onetay
Hi all,

The title says it all....i am off sick from work (have been for the last 2 1/2 months). I had an appointment with my works occupational health docotr and he says if im no better when i see him next month (27th January) he will have to do a report to my work telling them he considers i need to retire on the grounds of ill health.
I know work cant wait forever for me to get better but i am now on steroids (6th day today), although i woud say i haven't noticed any improvement.
Im so frustrated with sle......i so want to be well, i so want to be back at work, i don't want to have this illness force me to lose my job. I have been there for 22 years.
When the doctor told me they will sack me soon so best to go for ill health retirement i burst into tears. He said i maybe able to get another job in the future......but.........i dont want another job, i want my job, it is more to me than just a job, it is a huge part of my life, its all i have known my whole working life, i have lots of friends there and i will miss them all so much.


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Jane, I'm so sorry you find yourself in this position. I have to say that I started on steroids recently and they are now working - took about a week before I started to notice a difference. It was quite small at first - realised I wasn't falling asleep every 5 mins and now after almost 3 weeks I'm having consecutive pain free days for the first time in years. On the work front you don't say whether you are working full time or part time. If it's full time, have you considered part time or flexible working patterns to cope with your illness? - employers are supposed to respond to reasonable requests in order to allow you to keep working if you can. i'm lucky in my job as I can sort my diary to moreorless suit myself so when I get a bad lupus day I just work from home rather than end up off sick.
I do hope things get sorted out for you and that there are alternatives which mean you don't have to give up work altogether. But remember your health must come first.
Lis :)
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