The Lupus Forum banner

hello - a brief update

268 Views 5 Replies 6 Participants Last post by  macfamily53
Hello everyone

Sorry for not coming around...been rather exhausted.

Brief update: I got a job - full time - yes full time...Monday -Friday, 8:30-5. I was working before 4 days and got laid off after 11 years. So during the brief layoff I tried to get myself together and well, you know the economy out there is a tough one so I could not be picky nor choosy. This one fell in my lap through another person.

I have to say it is tough. Working full time. I am having fevers, fatigue and massive pain right now to say the least. It is hard to any type of life outside of work right now. I have been there 4 weeks. I am on my 5th.

My new boss though, knows about my Lupus, was very accomdating and took out the lights above me and so I don't sit directly under the florescents. He is very understanding and accomodating and praises my work. That my friends, makes it a bit easier.

I am not sure how this will play out in the long run. But for now, I continue trucking on and see what happens.

I have decided to not take the inhibitor for my kidneys. I think that is ok with the kidney specialist too. I have decided to not increase my Immuran although I may revisit that one.

I still have a lot of stress outside of work, but I should say, the stress is still there but I think I have managed it better lately. Or maybe I am just too darn exhausted by the time I come home, I really have no energy to even think.

So I hope maybe on the weekend, I can come on and do some reading and catch up on things. I don't want you to think I forgot about all of you, cause I always think about everyone and wonder how everyone here is doing. So please take care of yourself and I hope that things improve for all.

It is a very difficult thing, this Lupus, in all aspects of life. Simply put.
See less See more
1 - 6 of 6 Posts
H Paula! I knew I hadn't seen you for a while. Hang in there and do the best you can!! Hopefully you and save up some energy and rest on the weekends. Gentle hugs to you!:hehe:
Hi Paula,
It is nice to hear from you. Glad you got a new job. Sounds like you have a very caring boss.

Although it sounds like you might be over doing, with all the symptoms you are having. :hug:

Take care,
Hi Paula,

Congratulations on your new job. I know the lights were your biggest concern. It is great that the accommodation was made for you.

Hope you have a relaxing weekend.

Take care,
Hi Paula

Im thrilled you managed to get a new job but sorry that you are so exhausted :hugbetter:

Im glad to hear from you. Sometimes when you dont hear from someone for a while you naturally worry about them and wonder how they are doing.

I hope you can get plenty of rest over the weekend. I spend most evenings snoozing on the sofa until about 10pm and as much time as I can in bed on the weekends! Yes Lupus is a difficult thing alright.

Take care
Hi Paula

I am glad you found a new job and very glad to hear from you.I dont know how you do it working so much but i do understand needing to((((hugs)))).My hubby has been looking for quite some time for any job at all but absolutley nothing out there in the USA.Please be careful though so you dont end up real sick and in the hosptial(((hugs))).Thank you for letting us know how you are and i sure understand not feeling like posting on the weekend as you must be exhausted for sure.Take care of yourself as much as you can and please let us know how you are doing when you feel you can.

1 - 6 of 6 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.