Hello everyone
Sorry for not coming around...been rather exhausted.
Brief update: I got a job - full time - yes full time...Monday -Friday, 8:30-5. I was working before 4 days and got laid off after 11 years. So during the brief layoff I tried to get myself together and well, you know the economy out there is a tough one so I could not be picky nor choosy. This one fell in my lap through another person.
I have to say it is tough. Working full time. I am having fevers, fatigue and massive pain right now to say the least. It is hard to any type of life outside of work right now. I have been there 4 weeks. I am on my 5th.
My new boss though, knows about my Lupus, was very accomdating and took out the lights above me and so I don't sit directly under the florescents. He is very understanding and accomodating and praises my work. That my friends, makes it a bit easier.
I am not sure how this will play out in the long run. But for now, I continue trucking on and see what happens.
I have decided to not take the inhibitor for my kidneys. I think that is ok with the kidney specialist too. I have decided to not increase my Immuran although I may revisit that one.
I still have a lot of stress outside of work, but I should say, the stress is still there but I think I have managed it better lately. Or maybe I am just too darn exhausted by the time I come home, I really have no energy to even think.
So I hope maybe on the weekend, I can come on and do some reading and catch up on things. I don't want you to think I forgot about all of you, cause I always think about everyone and wonder how everyone here is doing. So please take care of yourself and I hope that things improve for all.
It is a very difficult thing, this Lupus, in all aspects of life. Simply put.
Sorry for not coming around...been rather exhausted.
Brief update: I got a job - full time - yes full time...Monday -Friday, 8:30-5. I was working before 4 days and got laid off after 11 years. So during the brief layoff I tried to get myself together and well, you know the economy out there is a tough one so I could not be picky nor choosy. This one fell in my lap through another person.
I have to say it is tough. Working full time. I am having fevers, fatigue and massive pain right now to say the least. It is hard to any type of life outside of work right now. I have been there 4 weeks. I am on my 5th.
My new boss though, knows about my Lupus, was very accomdating and took out the lights above me and so I don't sit directly under the florescents. He is very understanding and accomodating and praises my work. That my friends, makes it a bit easier.
I am not sure how this will play out in the long run. But for now, I continue trucking on and see what happens.
I have decided to not take the inhibitor for my kidneys. I think that is ok with the kidney specialist too. I have decided to not increase my Immuran although I may revisit that one.
I still have a lot of stress outside of work, but I should say, the stress is still there but I think I have managed it better lately. Or maybe I am just too darn exhausted by the time I come home, I really have no energy to even think.
So I hope maybe on the weekend, I can come on and do some reading and catch up on things. I don't want you to think I forgot about all of you, cause I always think about everyone and wonder how everyone here is doing. So please take care of yourself and I hope that things improve for all.
It is a very difficult thing, this Lupus, in all aspects of life. Simply put.