Hi my name is Jen I am 59 and I live in the UK. I was diagnosed with CFS/ME following a prolonged chest infection which developed into pneumonia followed by pleurisy almost 4 years ago. My GP has continued to run tests and I have been referred to Endocrinology, Neurology and lately to a Rheumatologist. This was the first consultant to take a full family history and I felt very relieved when he actually confirmed that he believes I have Lupus. He gave me the ARC leaflet to read and ordered a lot of blood tests and x-rays.
During my search for a diagnosis, I have been told that 'it's in my head' and that I am depressed. I expect many of you have experienced the same reaction from doctors.
The rheumy has confirmed that I have Raynaud's and Sjogren's. I have to return to him in July when all my results should be back.
Anyway, pleased to meet you all and looking forward to getting to know you.
During my search for a diagnosis, I have been told that 'it's in my head' and that I am depressed. I expect many of you have experienced the same reaction from doctors.
The rheumy has confirmed that I have Raynaud's and Sjogren's. I have to return to him in July when all my results should be back.
Anyway, pleased to meet you all and looking forward to getting to know you.