Well...I think the last time I posted a thread was back in May. I am long overdue!! At that time, I was doing poorly and needed a reduction in work. I was able to get donated sick hours (160 hours to get me started!) and took at least 10 hours per week so that I only had to work 30 hours/week at the most. It helped a lot in reducing my fatigue.
Since then...I have gotten a new job (same employer, but new location and position) working at a great natural park. I get to be outside whenever I want and I feel less like I am in the city. The only thing tough about this job is that sometimes I need to walk the trails in the park, but don't feel very well. Other times though, I am thankful for the opportunity to get some relatively easy exercise during my work hours
This job is only 30 hours/week and I get paid more than my last one, so no loss of income for me! Yay!
My lupus is status quo for the moment. Still on plaq, pred, mtx (higher than I used to be) and other stuff. I decided to donate my hair back in June because it was too much of a burden for me anymore...cut off about 10-11 inches and haven't looked back once! I've been keeping it above my shoulders since then. Sometimes I miss being able to braid it, but it sure makes shampooing a lot easier. Currently, I'm dealing with a cold that I've had for 10 days now...and it sparked a suspected SLE flare about 3 or 4 days ago (complete with the joint pain/stiffness, chest pains, low grade fever, etc.). Rheumy says I need to see my GP to rule out an infection before we treat the flare, otherwise it could make things worse. I'm being stubborn and am sick of going to doctors for silly things like COLDS. Haha.
Outside of that stuff, I am doing alright! The winter has been GREAT with lots of snow (such a surprise out here!) that made me feel like I was back home. I don't have too much exciting news to report, but wanted to say hi and report that I am alive I hope you all are managing well. I will be around more these days since I have upgraded and gotten the internet at home (yay!).
Take care,
kit
Since then...I have gotten a new job (same employer, but new location and position) working at a great natural park. I get to be outside whenever I want and I feel less like I am in the city. The only thing tough about this job is that sometimes I need to walk the trails in the park, but don't feel very well. Other times though, I am thankful for the opportunity to get some relatively easy exercise during my work hours
This job is only 30 hours/week and I get paid more than my last one, so no loss of income for me! Yay!My lupus is status quo for the moment. Still on plaq, pred, mtx (higher than I used to be) and other stuff. I decided to donate my hair back in June because it was too much of a burden for me anymore...cut off about 10-11 inches and haven't looked back once! I've been keeping it above my shoulders since then. Sometimes I miss being able to braid it, but it sure makes shampooing a lot easier. Currently, I'm dealing with a cold that I've had for 10 days now...and it sparked a suspected SLE flare about 3 or 4 days ago (complete with the joint pain/stiffness, chest pains, low grade fever, etc.). Rheumy says I need to see my GP to rule out an infection before we treat the flare, otherwise it could make things worse. I'm being stubborn and am sick of going to doctors for silly things like COLDS. Haha.
Outside of that stuff, I am doing alright! The winter has been GREAT with lots of snow (such a surprise out here!) that made me feel like I was back home. I don't have too much exciting news to report, but wanted to say hi and report that I am alive
I hope you all are managing well. I will be around more these days since I have upgraded and gotten the internet at home (yay!).Take care,
kit
