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Hi Jules,

WELCOME!! to the site.

I hope you find it as helpful here as i have for the past 2 yrs.

Sorry t her of your illness,, I hope they find out what exactly it is so they can give some kind of relief.

In our case, this is always a hard thing to diagnose for doctors. The symptoms could mean a lot of things. But it sounds like you have a good doctor working on your behalf.
You can message me at anytime or we can chat on chat board if you would like to talk.

Good Luck
Take Care
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