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Hello Jules,
I am very sun sensitive too. I am sorry you feel so bad. I hope you get good help from the Docs.

If it is Lupus you will soon learn to cope.
If you need travel, life or health insurance Lupus can be a problem, so sort them now if appropriae before a diagnosis is made. (Hope you don't think I'm being nosey,but I am uninsurable and unmortgageable and could have done with this advice myself.)
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