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Welcome to the forum Jules

I think you will find it a great help to getting a better understanding about what you are going through as well as feed back about the proposed meds. There is also a wealth of experienced understanding of the human and relationship difficulties that people with chronic conditions have to deal with.

Obviously you need to stay out of the sun as much as possible and protect yourself as fully as possible if you have to be exposed to it. This is important because UV exposure can cause unseen worsening systemic disease in addition to making you feel bad and affecting the skin. This is one of the therapeutic needs that we ourselves are entirely responsible for.

Bye for now :)

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