Hi was using the board without introducing myself, sorry 
I am 53, dx with SLE since 2000 and Sjogrens since 2004. Mostly fatigue and joint pain, plus a tendency to get any infection going - tooth, flu, gut you name it I pick it up. I have had CNS involvement but is quiet now except for cognitive dysfunction and the occasional mood dip. Meds inclue mepacrine and NSAIds plus pain meds, omeprazole, fish oil, glucosamine, aspirin, eye drops, mouth gel and lots of other peripheral bits and pieces depending on which bit isn't working.
I mostly cope OK, but had a bit of a slump this year, very tired, very achey and not able to do much. I have a very supportive partner. I work occasionally from home but lately I have mostly been lying around reading and wanting more chocolate than my partner will go and get for me! I have mobility problems, find it hard to stand for any time really and can only walk short distances, and some days no distance at all. I love reading and sewing and knitting so I don't get bored but just now am really missing what little energy I had 7 months ago, it went when I got a cold and has never come back. Still, trying a new NSAID might help. If not I will go back on steroids form whch I have had a year off.
Thats it. Thanks for all the support so far.
Sara
I am 53, dx with SLE since 2000 and Sjogrens since 2004. Mostly fatigue and joint pain, plus a tendency to get any infection going - tooth, flu, gut you name it I pick it up. I have had CNS involvement but is quiet now except for cognitive dysfunction and the occasional mood dip. Meds inclue mepacrine and NSAIds plus pain meds, omeprazole, fish oil, glucosamine, aspirin, eye drops, mouth gel and lots of other peripheral bits and pieces depending on which bit isn't working.
I mostly cope OK, but had a bit of a slump this year, very tired, very achey and not able to do much. I have a very supportive partner. I work occasionally from home but lately I have mostly been lying around reading and wanting more chocolate than my partner will go and get for me! I have mobility problems, find it hard to stand for any time really and can only walk short distances, and some days no distance at all. I love reading and sewing and knitting so I don't get bored but just now am really missing what little energy I had 7 months ago, it went when I got a cold and has never come back. Still, trying a new NSAID might help. If not I will go back on steroids form whch I have had a year off.
Thats it. Thanks for all the support so far.
Sara